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Thank you to all of our supporters who helped make great things possible in PWS research in 2020. Everything we do is made possible by YOU.

In 2020, more than 9,500 donors supported PWS research and our mission to eliminate the challenges of PWS. We would like to thank all of our supporters: everything we do is made possible by you!

Here are just a few of our accomplishments from this past year.

2020 Impact Infographic LONG (2)


Join us in 2021!
We can, and we will find treatments for PWS.
With your help, we will get there faster!

Fundraise For PWS Research




Topics: Research

Susan Hedstrom


Susan Hedstrom is the Executive Director for the Foundation for Prader-Willi Research. Passionate about finding treatments for PWS, Susan joined FPWR in 2009 shortly after her son, Jayden, was diagnosed with Prader-Willi Syndrome. Rather than accepting PWS as it has been defined, Susan has chosen to work with a team of pro-active and tireless individuals to accelerate PWS research in order to change the future of PWS. Inspired by her first FPWR conference and the team of researchers that were working to find answers for the syndrome, she joined the FPWR team in 2010 and led the development of the One SMALL Step walk program. Under Susan’s leadership, over $15 million has been raised for PWS related research.