Interactive PWS Clinical Trial Finder Now Available!

PWS-Interactive-Clinical-Trial-tabletIn our continued commitment to provide information on PWS clinical trials, FPWR is pleased to share our new Interactive PWS Clinical Trial Finder. The latest addition to our clinical trials information page, this interactive map allows caregivers to quickly find trial sites based on location and learn more about sites that are of interest to them.

The PWS community is fortunate to have over half a dozen drug trials opening this year, and it is FPWR’s mission to provide the resources needed to help families find the PWS trials that are best for their family and loved one with PWS.

We're proud to be able to provide these resources and hope these tools continue to help patients enroll in PWS clinical trials as quickly as possible.

Try the PWS Clinical Trial Finder

Topics: News

Susan Hedstrom


Susan Hedstrom is the Executive Director for the Foundation for Prader-Willi Research. Passionate about finding treatments for PWS, Susan joined FPWR in 2009 shortly after her son, Jayden, was diagnosed with Prader-Willi Syndrome. Rather than accepting PWS as it has been defined, Susan has chosen to work with a team of pro-active and tireless individuals to accelerate PWS research in order to change the natural history of PWS. Inspired by her first FPWR conference and the team of researchers that were working to find answers for the syndrome, she hosted her first One SMALL Step walk in 2010 and began the development of the One SMALL Step walk program which now raises over $1.5 million a year for PWS research.