Research Update: Oxytocin for the Treatment of PWS

FPWR is pleased to support Dr. Tauber of Children’s Hospital in Toulouse, France and her team in their ongoing efforts to investigate the effects of Oxytocin on individuals with PWS [Early to midterm oxytocin effects on the brain metabolism of adults with Prader-Willi syndrome].Thanks to your support, Dr. Tauber's research team will be expanding their initial Oxytocin study for a longer duration with multiple doses of oxytocin, and incorporating advanced imaging analysis to understand how oxytocin administration alters brain metabolism with the goal of finding the optimal schedule and dose of oxytocin for adults with PWS. The study team has been laying the groundwork for this larger, more extensive project, and they have now received approval to begin the study, with the first patient set to enroll later this year! We will keep you informed as results of this study become available.

For updated information on PWS clinical trial opportunities and to sign up for a monthly PWS Clinical Trial Alert, visit the PWS Clinical Trials page.PWS Clinical Trials

Topics: Research

Susan Hedstrom


Susan Hedstrom is the Executive Director for the Foundation for Prader-Willi Research. Passionate about finding treatments for PWS, Susan joined FPWR in 2009 shortly after her son, Jayden, was diagnosed with Prader-Willi Syndrome. Rather than accepting PWS as it has been defined, Susan has chosen to work with a team of pro-active and tireless individuals to accelerate PWS research in order to change the natural history of PWS. Inspired by her first FPWR conference and the team of researchers that were working to find answers for the syndrome, she hosted her first One SMALL Step walk in 2010 and began the development of the One SMALL Step walk program which now raises over $1.5 million a year for PWS research.

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