Upcoming Events

Explore upcoming virtual and in-person events where you can connect, learn, fundraise, and move PWS research forward.

Conferences and Webinars

FPWR's conferences, webinars, and educational events help families, clinicians, and researchers stay informed about the latest advances in research and care for people with Prader-Willi syndrome. Join us in person or online to learn from experts and connect with the community.

Group of FPWR conference attendees smiling together during a reception.
PENNSYLVANIA

Annual Family Conference
Philadelphia, PA
October 9-10, 2026

 

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

Father holding his smiling baby, who wears a nasal feeding tube, beside a pond in a park.
VIRTUAL

Parent Connect Call
Live with Abbie Ogilbee
September 16, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

Whats Happening in PWS Research
VIRTUAL

What's Happening In Research?
Live with Dr. Theresa Strong
November TBD

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

Fundraising Events

Our volunteer-led fundraising events bring communities together to accelerate research and improve lives. Because our volunteers generously donate their time, every dollar raised goes further to fund research and support programs for families.

Select a highlighted state to view its events.

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Events By Date

MICHIGAN

One SMALL Step
Rochester Hills, MI
September 12, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

NEBRASKA

One SMALL Step
Lincoln, NE
September 13, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

CALIFORNIA

Nathan's Hoppy Birthday Party
Poway, CA
September 19, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

INDIANA

One SMALL Step
Avon, IN
September 26, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

IOWA

One SMALL Step
Center Point, IA
September 27, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

ILLINOIS

Pars for PWS
Woodridge, IL
October 1, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

OHIO

One SMALL Step
North Ridgeville, OH
October 3, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

PENNSYLVANIA

Live Life Full Philly
Philadelphia, PA
October 10, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

NORTH CAROLINA

One SMALL Step
Cary, North Carolina
October 24, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

TEXAS

One SMALL Step
San Antonio, TX
October 31, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

GEORGIA

One SMALL Kick
Lawrenceville, GA
November 7, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

Completed Events

FLORIDA

One SMALL STEP
Palm Harbor, FL
January 10, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

MARYLAND

Yoga & Brunch for Siena 
Hershey, PA
January 11

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

ILLINOIS

Diamonds and Denim
Springfield, IL
February 7, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

NEW YORK

Rare Disease Day with Legends
Kings Park, NY
February 28, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

COLORADO

Birdies for Breakthroughs
Denver, CO
March 7, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

DC

Bourbon On The Hill
Washington, DC
March 14, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

CALIFORNIA

Nathan's Army Bag Battle
Poway, CA
March 22, 2026

 

Heading 1

with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

MARYLAND

One SMALL STEP
Reisterstown, MD
May 5, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

CALIFORNIA

Pars for Peyton
Rancho Santa Margarita, CA
May 7, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

LOUISIANA

One SMALL STEP
Baton Rouge, LA
May 9, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

CALIFORNIA

Bike for Bear
Ventura, CA
May 16, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

TEXAS

HopeFULL Dallas
Dallas, TX
May 17, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

INDIANA

One SMALL Step Hobart
Hobart, IN
May 23, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

NEW JERSEY

One SMALL Step New Jersey
Sewell, NJ
May 30, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

DC

One SMALL Step DC
Washington, DC
June 6, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

ILLINOIS

One SMALL Step Deerfield
Deerfield, IL
June 13, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

CALIFORNIA

SYS Shootout
Lodi, CA
June 27, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

MICHIGAN

Kaydence Reed Charity Golf Classic
Saranac, MI
July 25, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

ILLINOIS

I Gotta Guy Sausage Festival
Chicago, IL
August 6, 2026

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

INDIANA

Fighter Jhett Classic
Indianapolis, IN
August 8, 2026

Heading 1

with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

KENTUCKY

One SMALL Step Kentucky
Elizabethtown, KY
August 8, 2026

Heading 1

with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

OREGON

One SMALL Step Northwest
Hillsboro, OR
August 8, 2026

Heading 1

with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

Fighter Jhett Classic Golf Fundraiser

Let's Make an Impact Together

Whether you have an idea or don't know where to begin, we're here to help. Complete the short form below, and a member of our team will be in touch to help you get started.

 

By Location

Hover over a state to see future and past events
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Fundraiser Events

One Small Step Michigan

Rochester Hills, Michigan

September 12, 2026 (1:00 PM)

One Small Step Nebraska

Lincoln, Nebraska

September 13, 2026 (10:00 AM)

Nathan's Army Hoppy Birthday Party

Poway, California

September 19, 2026 (6:00 PM)

One Small Step Avon

Avon, Indiana

September 26, 2026 (1:30 PM)

One Small Step Iowa

Center Point, Iowa

September 27, 2026 (10:00 AM)

Pars for PWS

Woodridge, Illinois

October 1, 2026 (11:30 AM)

One Small Step Cleveland

North Ridgeville, Ohio

October 3, 2026 (1:00 PM)

Live Life Full Philly

Philadelphia, Pennsylvania

October 10, 2026 (7:00 PM)

One Small Step Raleigh

Cary, North Carolina

October 24, 2026 (10:00 AM)

One Small Step San Antonio

San Antonio, Texas

October 31, 2026 (8:30 AM)

One Small Kick

Lawrenceville, Georgia

November 7, 2026 (12:00 PM)

One Small Step Florida

Palm Harbor, Florida

COMPLETED

Yoga & Brunch for Siena

, Pennsylvania

COMPLETED

Diamonds and Denim

Springfield, Illinois

COMPLETED

Rare Disease Day with Legends

Kings Park, New York

COMPLETED

Birdies For Breakthroughs

Denver, Colorado

COMPLETED

Bourbon On The Hill

Washington, DC, Virginia

COMPLETED

Nathan's Army Bag Battle

Poway, California

COMPLETED

One Small Step Maryland

Reisterstown, Maryland

COMPLETED

Pars For Peyton Golf Tournament

Rancho Santa Margarita, California

COMPLETED

One Small Step Baton Rouge

Baton Rouge, Louisiana

COMPLETED

Bike for Bear

Ventura, California

COMPLETED

HopeFULL Dallas

Dallas, Texas

COMPLETED

One Small Step Hobart

Hobart, Indiana

COMPLETED

One Small Step New Jersey

Sewell, New Jersey

COMPLETED

One Small Step DC

Washington, DC, Virginia

COMPLETED

One Small Step Deerfield

Deerfield, Illinois

COMPLETED

SYS Shootout

Lodi, California

COMPLETED

Kaydence Reed Charity Golf Classic

Saranac, Michigan

COMPLETED

I Gotta Guy Sausage Festival

Chicago, Illinois

COMPLETED

One Small Step Northwest

Hillsboro, Oregon

COMPLETED

One Small Step Kentucky

Elizabethtown, Kentucky

COMPLETED

Fighter Jhett Classic

Indianapolis, Indiana

COMPLETED