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    May is PWS Awareness Month

    Awareness matters. Action changes what’s possible.

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    May is PWS Awareness Month.

    It’s a time to share stories, build understanding, and accelerate the research our community is counting on.

    Awareness starts the conversation. Action moves it forward.

    Here are 3 simple ways you can take action for PWS this month:

     

    1. Raise Awareness

    Start by helping more people understand PWS and why research matters.

    • Share daily PWS facts – Follow us on social or sign up for daily fact emails to help raise awareness. Get the Facts>>

    • Update your profile picture – Show your support by adding a PWS Awareness Month frame to your profile picture. Profile Picture >>
    • Use a PWS Zoom background – Make your next virtual meeting an opportunity to educate others. Zoom Background >>

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    Join Our Awareness Month Email List to Get Your Daily Facts

    2. Complete Your Registry Surveys

    One of the most powerful ways you can drive progress is by participating in the Global PWS Registry. The FDA relies on well-documented data to approve new treatments, and the Registry provides the natural history data researchers need. Your participation helps shape the future of PWS care and ensures the voices of those living with PWS are heard. Take 10 minutes to complete or update your surveys today. Visit the Registry >>

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    Visit the Global PWS Registry

    Every survey you complete in the Global PWS Registry adds to our collective understanding of PWS. 

    Update Your Surveys

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    3. Fundraise or Donate

    Everything we do is made possible by you. If you want to accelerate PWS research, there are two simple ways to take part: Donate or fundraise to support our efforts.

    Not sure where to start? Keep it simple:

    Launch a page - create and share your fundraiser in minutes. Become a Fundraiser >>

    Host a Jeans Day – Collect donations at work or school to wear jeans. Become a Fundraiser >>

    Fast for the 15th – Skip a meal on May 15 and donate what you would have spent. Download the Graphic >>

     

    Awareness Month Toolkit

    Not sure where to start? We got you! Explore our Awareness Month Toolkit for templates, graphics, and more.

    Get the Toolkit

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    Awareness Toolkit

    What is PWS?

    This 3-minute video provides an overview of PWS and how it can affect individuals and families.