FPWR RESEARCH SYMPOSIUM AND FAMILY CONFERENCE
OCTOBER 3-5, 2019
NEW ORLEANS, LA
FPWR Research Town Hall
PWS Behavior Panel
PWS Clinical Trial Session
Melanie Silverman Interview: Nutrition for PWS

About The Event

  • Educational Speaker.jpg
  • New Parent and child.jpg
  • Welcome Reception.jpg
  • 2018 Attendees.jpg

FPWR's Annual Family Conference, held in conjunction with our PWS Research Symposium, is a powerful experience combining education, networking and community-building. Learn the latest in PWS research from experts in the field and have the opportunity to engage one-on-one with the researchers that have a deep interest in finding treatments for our loved ones with PWS.  In addition to presentations by PWS clinical experts, you will learn the latest in clinical trials and updates from the most promising research studies.

Featured 2019 Speakers

Elisabeth Dykens
Elisabeth Dykens
Professor of Psychology
Nirbhay N. Singh
Nirbhay N. Singh
Professor of Psychiatry
Patrice Carroll
Patrice Carroll
Behavior
Ashley Waguespack
Ashley Waguespack
Occupational Therapist
Jessica Boudreaux
Jessica Boudreaux
Occupational Therapist
Jessica Duis
Jessica Duis
Asst Professor of Pediatrics
Speaker Image
Speaker
To Be Announced

Family Conference Day 1 - Friday, October 4, 2019

09:00
-
12:00
New Parent Session and Luncheon *
01:00
-
05:00
Family Conference
07:30
-
10:30
Conference Welcome Reception

Family Conference Day 2 - Saturday, October 5, 2019

09:00
-
04:00
Family Conference

Highlighted Sessions 

New Parent and child.jpg

Join us for a special session just for new parents
This special pre-conference session is for parents who have received the PWS diagnosis within the last 24 months. Join us the morning of Friday, October 4th to meet other new families and learn from parents who are on this same journey. A luncheon will follow the session. Space is limited, please RSVP during ticket purchase.

 

Clinical Trials Panel.jpg

You won't want to miss our Clinical Trials Panel
There are more PWS clinical trials investigating treatments for PWS than ever! Stay up to date and learn the latest in current and upcoming clinical trials directly from trial representatives.

2018 Attendees.jpg

Behavior, Mindfulness, and therapeutic interventions! 

Want to take home tangible ideas that you can work on with your child?  This year’s conference is the place to be!  From PWS behavior specialists to mindfulness practice to occupational therapists, we have something that will help you and your family.   

 
Can't Get Enough of the Science?
 

Join us for the PWS Research Symposium 

Thursday, October 3rd, 2019, from 9:00am-5:00pm

An exciting day of the latest breakthroughs in Prader-Willi syndrome research including genetics, molecular mechanisms, PWS models, metabolism, therapeutic development, clinical care, and clinical trials. Presentations will be given for a scientific audience (researchers an academics). Parents are welcome to attend.

Research Symposium Registration $225

Learn more.

 

08:00
-
09:00
Networking Breakfast
09:00
-
05:00
Abstract Presentations
05:00
-
07:00
Scientific Reception and Poster Sharing

Registration Details

 Mardi Gras Ticket Sale
February 1-March 5

Special pricing for our parents and family members only
Family Conference: $150
Family Conference Childcare: $150

Standard Conference Pricing

Research Symposium: Thursday October 3rd
Standard Registration - $225

Family Conference AND Research Symposium:
Standard Registration - $574
Parent/Family Rate - $450

Family Conference Only
Standard Registration - $349
Parent/Family Member Rate - $225
Childcare (children 1 year and older) - $225

Register Now!

 

Refund Policy: discounted tickets are not refundable. Regular priced tickets may be refunded up to 30 days prior to conference, less a $25 processing fee.

 

12043058_10207269312832303_5663405681626457962_n.jpg

The Venue

DOUBLE TREE HOTEL

300 Canal St, New Orleans LA‎

Accommodations

 For your convenience, a room block has been established for FPWR conference guests at the Double Tree, New Orleans.
We have a great deal on rooms ($150/night) but they are limited, and you will only get the discount code after you register for conference!
 
 
OCTOBER 3 - 5, 2019
NEW ORLEANS, LA

Sign-up for Conference Updates

Our 2018 Sponsors

Sponsor Footer.jpg