FPWR RESEARCH SYMPOSIUM AND FAMILY CONFERENCE PRESENTED BY MILLENDO
OCTOBER 3-5, 2019
NEW ORLEANS, LA
FPWR Research Town Hall
PWS Behavior Panel
PWS Clinical Trial Session
Melanie Silverman Interview: Nutrition for PWS

About The Event

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FPWR's Annual Family Conference, held in conjunction with our PWS Research Symposium, is a powerful experience combining education, networking and community-building. Learn the latest in PWS research from experts in the field and have the opportunity to engage one-on-one with the researchers that have a deep interest in finding treatments for our loved ones with PWS.  In addition to presentations by PWS clinical experts, you will learn the latest in clinical trials and updates from the most promising research studies. Join us this year in New Orleans, LA at the Doubletree Hotel October 3-5.

Featured 2019 Speakers

Elisabeth Dykens
Elisabeth Dykens
Professor of Psychology
Nirbhay N. Singh
Nirbhay N. Singh
Professor of Psychiatry
Patrice Carroll
Patrice Carroll
PWS Behavior Specialist
Ashley Waguespack
Ashley Waguespack
Occupational Therapist
Jessica Boudreaux
Jessica Boudreaux
Occupational Therapist
Katy Chambers Updated
Katy Chambers
School Principal
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Jessica Duis
Asst. Professor of Pediatrics
theresa_s
Theresa Strong
Director of Research Programs, FPWR

Family Conference Day 1 - Friday, October 4, 2019

08:00
-
10:00
First Timers Meet and Greet
Come join us for coffee and croissants.
09:00
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12:00
New Parent Session and Luncheon *
01:00
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05:00
Conference Programming
07:30
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10:30
Conference Welcome Reception

Family Conference Day 2 - Saturday, October 5, 2019

08:00
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09:00
Rise and Shine Breakfast
09:00
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04:30
Conference Program

Highlighted Sessions 

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Join us for a special session just for new parents
This special pre-conference session is for parents who have received the PWS diagnosis within the last 24 months. Join us the morning of Friday, October 4th to meet other new families and learn from parents who are on this same journey. A luncheon will follow the session. Space is limited, please RSVP during ticket purchase.

 

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You won't want to miss our Clinical Trials Panel
There are more PWS clinical trials investigating treatments for PWS than ever! Stay up to date and learn the latest in current and upcoming clinical trials directly from trial representatives.

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Behavior, Mindfulness, and therapeutic interventions! 

Want to take home tangible ideas that you can work on with your child?  This year’s conference is the place to be!  From PWS behavior specialists to mindfulness practice to occupational therapists, we have something that will help you and your family.   

 
Can't Get Enough of the Science?
 

Join us for the PWS Research Symposium 

Thursday, October 3-4, 2019, 

Hear the latest breakthroughs in Prader-Willi syndrome research including genetics, molecular mechanisms, PWS models, metabolism, therapeutic development, clinical care, and clinical trials. Presentations will be given for a scientific audience (researchers an academics). Parents are welcome to attend.

Research Symposium Registration $235

Learn more.

 

08:00
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09:00
Networking Breakfast
09:00
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05:00
Abstract Presentations
05:00
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07:00
Scientific Reception and Poster Sharing
09:00
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12:00
Friday Presentations

Registration Details

Standard Conference Pricing

Research Symposium: October 3-4
Standard Registration - $235

Family Conference AND Research Symposium:
Standard Registration - $584
Parent/Family Rate - $450

Family Conference Only: October 4-5
Standard Registration - $349
Parent/Family Member Rate - $225
Childcare (children 1 year and older) - $225

Register Now!

Need Financial Aid? Fill out an application here.

Refund Policy: discounted tickets are not refundable. Regular priced tickets may be refunded up to 30 days prior to conference, less a $25 processing fee.

 

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The Venue

DOUBLE TREE HOTEL

300 Canal St, New Orleans LA‎

Accommodations

 For your convenience, a room block has been established for FPWR conference guests at the Double Tree, New Orleans.
We have a great deal on rooms ($150/night) but they are limited, and you will only get the discount code after you register for conference!
 
 
OCTOBER 3 - 5, 2019
NEW ORLEANS, LA

Sign-up for Conference Updates

Our 2019 Sponsors

Thank you conference sponsors!