FPWR ANNUAL FAMILY CONFERENCE 
Sept 30 - Oct 1
Chicago, IL

About The Event

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FPWR's 2022 Family Conference will be held September 30th and October 1st at Convene in Chicago, IL.

The two-day conference is a powerful experience combining education, networking, and community-building. Learn the latest in PWS research from experts in the field and have the opportunity to engage one-on-one with the researchers that have a deep interest in finding treatments for our loved ones with PWS. 

Our conference has something every parent traveling this PWS journey. From our special New Parents Session (0-2 yrs) to the Clinical Trials Panel to clinician presentations tailored for your child's needs, you won't want to miss all the FPWR conference has to offer!

Session Descriptions

 

Featured 2022 Speakers

Tony Chambers_Behavior Chef
Tony Chambers
Board-Certified Behavior Analyst
Sara Parker Higher Res
Sara Parker
Pediatric Speech Pathologist
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Elizabeth Roof
Senior Research Specialist
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Christian Schaaf
Medical Director
Lauren_Roth
Lauren Schwartz
Mental Health Programs
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Deepan Singh
Child, Adolescent & Adult Psychiatrist
Stafford Diane MD1395x
Diane Stafford
Clinical Professor of Pediatrics
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Theresa Strong
Director of Research Programs
Harold 2015
Harold van Bosse
Adjunct Professor of Orthopaedic Surgery

Family Conference Day 1 - Friday, September 30, 2022

09:00
-
12:00
New Parents Session (0-2)
Meet other new families and learn from parents on this journey.
01:00
-
05:00
Conference Programming
05:00
-
07:00
Welcome Reception
Join us for appetizers and drinks.

Family Conference Day 2 - Saturday, October 1, 2022

09:00
-
04:00
Conference Program
06:00
-
10:00
Live Life Full, Chicago Gala (Separate Registration Required)

Highlighted Sessions 

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Join us for a special session just for new parents
This special pre-conference session is for parents who have received the PWS diagnosis within the last 24 months. Join us the morning of Friday, September 30 to meet other new families and learn from parents who are on this same journey. A luncheon will follow the session. Space is limited, please RSVP during ticket purchase.

 

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You won't want to miss our Clinical Trials Panel
There are more PWS clinical trials investigating treatments for PWS than ever! Stay up to date and learn the latest in current and upcoming clinical trials directly from trial representatives.

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Leading experts provide practical information you can apply to your child, and family, immediately!  

Want to take home tangible ideas that you can work on with your child?  This year’s conference is the place to be!  Sessions will be announced spring 2022!

 
Can't Get Enough of the Science?
 

Join us for the PWS Research Symposium 

Thursday, September 29- Friday, September 30

Hear the latest breakthroughs in Prader-Willi syndrome research including genetics, molecular mechanisms, PWS models, metabolism, therapeutic development, clinical care, and clinical trials. Presentations directed to a scientific audience (researchers and academics). Parents are welcome to attend.

Research Symposium Registration:
$300

* Parents are invited to join us for FREE Friday morning!!

Learn more.

 

08:00
-
09:00
Networking Breakfast
09:00
-
05:00
Abstract Presentations
05:00
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07:00
Scientific Reception and Poster Sharing
09:00
-
12:00
Friday Presentations

Registration Details

Standard Conference Pricing

Research Symposium: September 29-30
$300
 
Family Conference: September 30 - October 1
$350

Research Symposium & Family Conference:
$650
 

Family Discounted Rates:
(for parents and relatives of children with PWS/SYS/USP7)

Family Conference Only:
$250
 
Research Symposium & Family Conference:
$550
Deadline for Registration: September 21st
 

Limited financial assistance is available for families who otherwise cannot attend the conference.
Learn more and apply.

Refund Policy: Tickets may be refunded up to
 30 days prior to conference, less a $25 processing fee.

*Covid Policy: Proof of vaccination or a Negative COVID Test (PCR or Rapid) within 48hrs of the program date (test results must be digital read outs not the at home test).  We will notify our guests of any changes to this policy.

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The Venue

CONVENE

233 S Wacker, Chicago, IL

Accommodations

A room block is available at the W Chicago Hotel - City Center
with a discounted room rate of $201/night.
This rate is only available until September 8, 2022.
A link with the discounted rate will be provided in your registration confirmation email. 

September 30-October 1, 2022
CHICAGO, IL

Sign-up for Conference Updates

OUR 2022 SPONSORS

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