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FPWR 2022 Conference Speakers Announced

The most knowledgeable experts in the PWS field will share the latest developments at the 2022 FPWR conference, to be held in Chicago Sept. 30-Oct. 1.

fpwr-2022-conference-speakers-announcedYou won’t want to miss these speakers at the 2022 FPWR Family Conference this September and October in Chicago, IL.

Are you ready to join like-minded game-changers with direct access to the people, knowledge, and inspiration you need to help your child at the lowest price of the year?

Want to take home tangible ideas that you can work on with your child? This year’s conference is the place to be. We have invited many of the top PWS experts in the world to discuss therapeutic interventions you can use at home!The FPWR 2022 conference will have speakers for every age group, from infant to adult, who will share what has been learned in recent and ongoing research studies. Highlighted experts include Dr. Diane Stafford, Dr. Deepan Singh, Dr. van Bosse, and Elizabeth Roof covering such topics as:

  • Standards of Care for PWS with Dr. Stafford

  • ABA & PWS: Common Practices and Tips for Home

  • Behavior and Mental Health in PWS: Expert Panel and Roundtable Discussion

  • Orthopedic Challenges in PWS and Treating Orthopedic Impairments in PWS

  • Feeding Techniques for Children 0-2

  • What's Happening in Research?

And you will definitely want to attend our Clinical Trials Panel and hear exclusive updates on trials happening right now!


Learn more about our speakers and conference details!

With premier experts in their fields and the backdrop of Chicago this year’s FPWR Family Conference promises to be an event to remember! 

We have a killer deal on rooms ($201/night) but they are limited, and you will only get the discount code after you register for the conference! Learn more and register here.

We look forward to seeing you in  Chicago!

Learn More About the Conference

Topics: News

Melissa Demand


Melissa became involved with FPWR in 2014 after her son, Kemett, was diagnosed with PWS. That year she hosted her first One SMALL Step Walk which raised over $115,000 and earned herself the honor of hosting the FPWR conference in Austin, TX in 2015. Melissa has over 9 years of fundraising and development experience and a Masters in Social Work from The University of Texas with an emphasis on Community and Administrative Leadership. Melissa will be assisting with database management and administrative duties.