The early years after a PWS diagnosis come with a lot of questions. The New Parent Track is designed to help you build knowledge, confidence, and connections with families who understand exactly where you are. 
What You'll Find in the New Parent Track
- Dedicated workshops for families with children ages 0-2
- Opportunities to connect with other new parents
- Practical advice from experienced parents
- Access to leading PWS clinicians and specialists
Featured Sessions
Families who have received a PWS diagnosis within the past 24 months are invited to join two special sessions created specifically for newly diagnosed families.
Endocrine Recommendations for Children Ages 0-2
What medical care should your child receive during the first years after diagnosis? Pediatric endocrinologist Dr. Sani Roy will provide an overview of growth hormone therapy, nutritional phases, available medications, recommended screenings, and the specialists families should consider as part of their child's care team.
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As children with PWS grow, they may face orthopedic challenges such as flat feet, hip dysplasia, scoliosis, and bone fragility. In this session, Dr. Harold van Bosse will discuss what families should know, what signs to watch for, and how early intervention can support musculoskeletal health and development.
Join Us October 9 - 10 in Philadelphia
These featured sessions are just a small sample of the programming available to new families at this year’s FPWR Family Conference. -1.png?width=457&height=586&name=_PWS%20Family%202026%20Program%20(1)-1.png)
In addition to the New Parent Track, there will be great opportunities to learn about the latest research, connect with other families, hear from leading experts, and gain practical tools for the journey ahead.
Conference attendees have access to a discounted room rate of $221/night at the Marriott Philadelphia Downtown, but rooms are limited and expected to sell out.
Hotel booking information will be provided after registration.
If you have questions about conference or what to talk to someone about what to expect, please reach out to Melissa Demand, melissa@fpwr.org
