FPWR Funded Researcher Mailing List

Our FPWR funded researchers are working hard to eliminate the challenges of PWS. How about spreading some cheer this season by sending a holiday card thanking them for their work? Mailing addresses for FPWR's currently funded researchers are below or can be downloaded here


FPWR Funded Researchers (2017/2018)


Tomaž Bratkovič
University of Ljubljana, Faculty of Pharmacy
Department of Pharmaceutical Biology
Aškerčeva 7
SI-1000 Ljubljana

Merlin G. Butler, MD, PhD, FFACMG
Departments of Psychiatry &
Behavioral Sciences and Pediatrics
Kansas University Medical Center
3901 Rainbow Boulevard, MS 4015

Stormy Chamberlain
18 Perry Ln
Oxford, CT 06478

Mauro Costa-Mattioli, PhD
Baylor College of Medicine
1 Baylor Plaza, BCM: 295 Room T734
Houston, TX 77030

Anastasia Dimitropoulos
Case Western Reserve University
11220 Bellflower Road, MTHM 126A
Cleveland, OH 44106-7123

Daniel J. Driscoll, MD, PhD
Professor of Pediatrics and Genetics
Box 100296
University of Florida College of Medicine
Gainesville, FL 32610-0296

Dr David Godler
Cyto-Molecular Diagnostic Research Laboratory,
Murdoch Children's Research Institute,
Royal Children's Hospital, 
50 Flemington Rd, Parkville VIC 3052
Melbourne, Australia

Deborah J. Good, Ph.D.
Virginia Tech
Department of Human Nutrition, Foods, and Exercise
1981 Kraft Drive (0913)
Blacksburg, VA 24061

Elizabeth Hammock
1107 West Call Street
Tallahassee, FL 32306-4301 

Patrick R. Hof, MD
Fishberg Department of Neuroscience
Icahn School of Medicine at Mount Sinai
One Gustave L. Levy Place, Box 1639
New York, NY 10029

Tony Holland
Douglas House
18b Trumpington Road,
Cambridge, CB2 8AH, UK

Vanderbilt Kennedy Center 
230 Appleton Place
Peabody Box 74
Nashville, TN 37203

Alexander Nectow (Nectow Lab)
Princeton Neuroscience Institute
Princeton University
Lot 20, Washington Road
Princeton, NJ 08544 

419 Devonshire St.
PA 15213

Ryan Potts
St. Jude Children’s Research Hospital
Department of Cell and Molecular Biology
262 Danny Thomas Pl
Memphis, TN 38105-3678

Lawrence T. Reiter, Ph.D.
Department of Neurology
The University of Tennessee Health Science Center
855 Monroe Ave., Link 415
Memphis, TN 38163

Elizabeth Roof
9540 Secretariat Lane
Brentwood, TN 37027

Stefan Stamm
Department of Molecular and Cellular Biochemistry
University of Kentucky, College of Medicine
B159 Biomedical Biological Sciences Research Bldg.
741 South Limestone
Lexington, KY 40536-0509 

Dr. Michael Talkowski
Richard B. Simches Research Center
Office 5.234
185 Cambridge St
Boston, MA 02114

Yossi (Joseph) Tam | DMD, PhD
Faculty of Medicine, The Institute for Drug Research
The Hebrew University of Jerusalem,
POB 12065, Jerusalem 91120, Israel

Rachel Wevrick, Ph.D. | Professor
Department of Medical Genetics, University of Alberta
816 Medical Sciences Building
Edmonton Alberta Canada T6G 2H7

Harold J. P. van Bosse, MD
Shriners Hospital for Children® - Philadelphia
3551 North Broad Street
Philadelphia, PA 19140 

Giles Yao, Ph.D.
Metabolic Research Laboratories
Level 4, WT-MRC Institute of Metabolic Science
Box 289, Addenbrooke's Hospital
Cambridge CB2 0QQ


Susan Hedstrom


Susan Hedstrom is the Executive Director for the Foundation for Prader-Willi Research. Passionate about finding treatments for PWS, Susan joined FPWR in 2009 shortly after her son, Jayden, was diagnosed with Prader-Willi Syndrome. Rather than accepting PWS as it has been defined, Susan has chosen to work with a team of pro-active and tireless individuals to accelerate PWS research in order to change the natural history of PWS. Inspired by her first FPWR conference and the team of researchers that were working to find answers for the syndrome, she hosted her first One SMALL Step walk in 2010 and began the development of the One SMALL Step walk program which now raises over $1.5 million a year for PWS research.

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