Still United, Still Inspired

We're still riding the wave of connection, energy, and inspiration from United in Hope 2025! This incredible event brought together three powerful organizations - the Foundation for Prader-Willi Research (FPWR), the Prader-Willi Syndrome Association | USA (PWSAUSA), and the International Prader-Willi Syndrome Organisation (IPWSO) - for a week of science, support, and shared purpose for the Prader-Willi syndrome (PWS) and Schaaf-Yang syndrome (SYS) communities. 

Together, we created something truly special. 

From family-focused panels and presenters to cutting-edge research presentations, the conference was packed with powerful moments. It was a chance to learn, connect, and unite with others who deeply understand the rare disease journey and we are so grateful for everyone who joined us in phoenix. There were over 1,200 people in attendance and the energy was palpable. Thank you to our sponsors, exhibitors, clinicians, researchers, professional providers, families and staff! 

Missed a session or want to rewatch your favorite?

We've got you covered! You can now access all the recorded sessions on YouTube. Each session is packed with valuable insights, updates, and practical tools for families and advocates. Watch the full playlist here: United in Hope 2025 Conference Recordings.

Here's a quick look at a few standout sessions:

• "What's Happening in PWS Research" - A look at the amazing things our researchers are investigating to enhance the lives of those living with PWS.
• "Advancing Treatments for PWS Clinical Trials" - The role FPWR and advocates play in advancing the search for new treatments for our loved ones.
• "Trailblazers Stories of Inspiration from Leaders in Our Community" - Stories from leaders in our community that are actively making a difference.

And so much more. Whether you're newly diagnosed or deep in the journey, there's something in these recordings for you. 

Mark your calendars now for the 2026 FPWR Family & Research Conference!

We're already looking ahead with hope and anticipation of getting back together. Save the date for our 2026 Research Symposium and Family Conference, October 7-10, 2026, in Philadelphia, Pennsylvania at the Philadelphia Marriott Downtown.

We can't wait to gather again - stronger, wiser, and even more united! Registration for the 2026 conference will open toward the end of this summer - be on the lookout for more details to ensure your spot!