The purpose of the study is to evaluate the feasibility and acceptability of a mindfulness-based intervention for managing temper outbursts in PWS. We will also be looking at the impact on anxiety.

The study is looking for individuals with and without PWS aged 13 to 30 years who have either a mild intellectual disability or typical IQ. This study will be conducted remotely via phone, email and video-conference and is, therefore, open to families both within and outside of Australia.

Eligible participants with PWS, their primary caregiver (parent or resident carer) and a teacher or support worker will be invited to participate in an 18-week trial. Two weeks before the start of the trial primary caregivers will be trained to use and teach the mindfulness-based intervention. The 18-weeks will be divided into three six-week periods termed baseline, intervention and follow-up. Throughout the 18-weeks, primary caregivers and a teacher support worker will be asked to monitor the person’s behaviours. During the intervention period, primary caregivers will teach the mindfulness-based intervention to the person with PWS.

To learn more please contact Lauren Rice, Phone: +61 2 9114 4106; Email: devpsych@fhs.sydney.edu.au