Schaaf-Yang Syndrome News

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Top 10 Reasons to Attend the 2026 FPWR Schaaf-Yang Syndrome Conference in Philadelphia

Join us October 9–10 in Philadelphia for the annual FPWR Family Conference, a unique gathering dedicated to families and professionals affected by Schaaf-Yang syndrome. Over two powerful days, leading researchers, clinicians, and families from around...
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Schaaf-Yang Syndrome Heroes Say, 'You Can Do Hard Things!'

A special contribution by guest blogger Leslie Born “No degree, or training, or book, or conversation, could have ever prepared me to be the parent of a child with a disability.” – Amanda Griffith-Atkins These words ring so true that some days I can’...