2020 FPWR Virtual Conference

	What's Happening in PWS Research? Join Dr. Theresa Strong and the FPWR Research Team to learn more about what is happening in PWS research and what you can be excited about! Watch the presentation >>
	Optimal Nutrition with Melanie Silverman What foods should you include in your nutrition plan and what foods should you avoid? Melanie Silverman provides nutrition tips for your loved ones with PWS. Watch the presentation >>
	Moving the Barriers for Improved Behavior Sensory Processing Disorder, Executive Functioning Disorder and challenges with Theory of Mind are all things that can get in the way of your child living their best life. Let’s talk about ways to move these barriers out of the way to allow your child to thrive and achieve their definition of a quality life. Watch the presentation >>
	Deconstructing Anxiety in PWS What does anxiety look like in the person with PWS? What leads to anxiety and how can it be treated? Dr. Deepan Singh will cover these topics and more! Watch the presentation >>
	PWS Clinical Trials Panel Stay up to date and learn the latest in current PWS clinical trails directly from trial representatives. Panelists include: Dr. Theresa Strong, Dean Carson (Saniona - Tesomet), Dr. Eric Hollander (CBDV), and Dr. Deepan Singh (Guanfacine) Watch the presentation >>
	Improving Social Functioning People with PWS struggle with social skills. In this 60-minute workshop, Elizabeth Roof will provide a brief overview of social functioning and ideas for how to work on these skills at home. Watch the presentation >>
	Return of Results: CARE-PWS Levo Therapeutics has announced the promising results of their phase 3 clinical trial of carbetocin. In this session, they will provide greater insights into the trial data as well as next steps for making the drug available to treat PWS. Watch the presentation >>
	Fireside Chat: Social Skills & Cognition Challenges in PWS. What we have learned. Join us for a lively conversation with our PWS behavior experts, Elizabeth Roof, Anastasia Dimitropoulos, Louise Gallagher, and Lauren Schwartz-Roth as they discuss what we know about social skills and social cognition challenges in PWS and what we can do to address these issues so our kids can be more successful. Watch the presentation >>
	Orthopedic Challenges in PWS Dr. Van Bosse has been practicing pediatric orthopedic surgery exclusively since 1994 and has helped hundreds of patients with PWS. In this session, he will discuss the diagnosis and treatment of orthopedic challenges in PWS. Watch the presentation >>
	Return of Results: DESTINY-PWS Soleno Therapeutics has announced the promising results of their phase 3 clinical trial of DCCR. In this session, they will provide greater insights into the trial data as well as next steps for making the drug available to treat PWS. Watch the presentation >>
	Take Action for PWS Research! You value PWS research and want to ensure that we find treatments for PWS. Join us for a panel of parents, like yourself, and hear how they have taken action for PWS research. Watch the presentation >>
	Acceptance and Commitment Training Acceptance and Commitment Training builds skills for living with greater awareness, openness, and engagement in valued life pursuits. This 90-minute workshop, led by Drs Janice Forster and Stuart Libman, will help you improve the skills that allow you to more effectively manage your parenting endeavors. Watch the presentation >>
	New Parents: Navigating Your Insurance Coverage and Estate Planning Hear successful strategies for maximizing your insurance benefits and estate planning with Brian Kalasek, VP of Special Risk for Mutual of Omaha insurance company and dad to a young son with PWS. Watch the presentation >>
	Clinical Trial Highlight: Pitolisant for PWS In this session, you will learn more about the investigation of Pitolisant in people with Prader-Willi syndrome. Topics to be discussed include: What is pitolisant and how does it work? Why study pitolisant in patients with PWS? And an overview of Harmony's Phase 2 clinical trial of pitolisant in patients with PWS. Recording coming soon.