Top 10 Reasons to Come to the FPWR Conference This Year

The FPWR Family Conference takes place October 4-6, 2018, in Las Vegas, NV. Here are the top 10 reasons you need to be here! 

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Nightlife, shopping, entertainment, and relaxation are all at your convenience!  Shop and eat your way around the Las Vegas strip for nightlife and entertainment; or visit the nearby Red Rock Canyon for breathtaking views and outdoor recreation. Catch one of the many concerts and shows offered in Las Vegas.  The options are endless! 

 

 

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Having a child with PWS changes who we are. But that doesn’t mean we can’t rise stronger and more hopeful for a better future.  Coming to an FPWR conference is a first step to taking control of your future with PWS.

 

8. Direct Access to Updated Information about PWS 

Nowhere else in the world will you get to hear from experts such as Dr. Kate Woodcock, Elizabeth Roof, Dr. Theresa Strong and other leading PWS researchers and experts all in one place. Find out what cutting-edge research is being done in the PWS world, straight from the researchers themselves!

 

2017FPWRindy-39477. Meet the Experts

There are Q & A sessions after every presentation and plenty of opportunities to meet the physicians and researchers at the Welcome Reception Friday night, or over coffee and lunch breaks. You get the chance to ask your questions and get personalized advice for your loved one in an intimate setting.  

 

6. Educate your loved ones

Research is hard to understand sometimes. But, when you have the experts at your disposal, you can ask the questions you need and then educate everyone you know about up-to-date PWS treatments, clinical care, research and statistics.

 

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There is simply no way to explain the feeling of being in a room full of people who “get it.” A room full of parents who have a child with Prader-Willi Syndrome. You have to be there to truly understand.  Lifelong friendships are made at every conference.

 

4. Conference Hotel

You can enjoy the beautiful Caeasar's Palace knowing you received an AMAZING room rate.  The hotel offers plenty of nightlife and gaming, a world class spashopping mall, and 7 pools to lounge by. Enjoy the PWS family meet and greet on Friday night at the hotel with live music, cash bar and hors d'oeuvres.

 

3. Help Other Parents

Either you ARE a new parent or you HAVE BEEN a new parent. At some point we all need a little help navigating the world as a special needs parent.  Attending a conference creates an environment to ask for help, and equips you to help the next generation of PWS parents; so that nobody has to start this journey alone. 

 

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We have a packed educational program, but before and after sessions, the FPWR family is known for being an uplifting, encouraging and downright fun group of people.  After meet and greets on Friday, you'll be ready to share a meal over lunch on Saturday with your new friends.  Saturday evening enjoy the night out with a group of parents who are ready to dance the night away at the nearby nightlife or have a quiet conversation over drinks at the hotel bar.  We guarantee the connections you make will last a lifetime. 

 

1. Get Involved

Have you ever wondered how to get involved with FPWR or want to be an advocate in your area for PWS? Attending a conference will get you connected to some of the most passionate PWS parents; all who welcome you with open arms to join our community and help change the world of PWS!

Learn more and register for the 2018 FPWR conference here!

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Topics: News

Sarah Peden

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Sarah is FPWR's One Small Step coordinator. She became involved with FPWR shortly after the diagnosis of her daughter, Lily in late 2009. She first began fundraising through her “Running for Lillian” event where she and her friends raised funds for PWS research through peer-to-peer fundraising. Sarah joined the One SMALL Step team in 2012 holding her first of many walks in Bloomington, Indiana. Sarah has held multiple volunteer roles with our organization prior to joining our staff and was the chair of our Community Leadership committee from 2014-2015. She has more than 11 years of event planning experience with for-profit and non-profit organizations and hold a Bachelor of Science in Recreation with an emphasis in tourism, hospitality and event management from Indiana University.

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