Clinical Trials Opportunities Archives - Foundation for Prader-Willi Research | Clinical Trials Opportunities (3)

Toward a better understanding of what it is like to care for and parent a child with PWS

In this study, adults will be interviewed 3 times over a 6 month period will be asked questions about personal and family health, family history and routines and what everyday living is like caring for a child with PWS.

Improving Social Skills in PWS with an online Social Skills Group

Researchers at Vanderbilt Kennedy Center in Nashville, Tennessee are conducting a study to improve and learn new social skills in PWS with an online social skills group. The project uses your home computer/laptop with webcam to participate in a group of PWS friends aged 16-26 years. The group will meet 3X/week for 10 weeks. For more information, please contact: Hailee Hunt-Hawkins hailee.m.hunt@vanderbilt.edu at 615-343-0915 Elizabeth Roof elizabeth.roof@vanderbilt.edu at 615-343-3330

Parent-led physical activity program for children ages 4 to 7 years old

CSU Fullerton is excited to invite families to participate in a study investigating a parent-led physical activity program for children ages 4 to 7 years old with and without PWS. A child ages 4-7 years with or without PWS and one parent per family are invited to participate.

Web-based Study on Cognition and Behavior in PWS

A New Web-Based Research Study on Cognition and Behavior in PWS is Recruiting Participants A study is being conducted by Researchers at the University of California, Los Angeles. The study will investigate cognition and behavior in a population of individuals between the ages of 10 and 50 with a diagnosis of Prader-Willi Syndrome (PWS). You can participate if you yourself have Prader-Willi Syndrome, or if you are the parent of a child between the ages of 10-50 with PWS. Participation may take up to an hour and a half. There is no travel required as the study is web-based which means that you will be asked to complete online clinical and neurocognitive forms. If you have any questions about this research study, please call Ariana Vajdi at 310-825-3458 or e-mail beardenlab.ucla@gmail.com

The PRETEND (Parent‐focused Remote Education to Enhance Development)

PRETEND (Parent‐focused Remote Education to Enhance Development) Research Study Information for Parents What is the goal of this research? This research study has two main goals.

Telehealth Intervention Study for Children with PWS

 

Studies on Task Switching and Temper Outbursts in PWS

Dr. Kate Woodcock is studying "task switching" difficulties in PWS.  People with PWS have deficits in their ability to task switch, and this may contribute to repetitive behaviors and temper outbursts (see a recent blog here, and information about Dr. Woodcock's FPWR supported study, here).  Dr. Woodcock's group is recruiting for three studies related to this issue.

Extraction of Neuronal Stem Cells from Dental Pulp for Human Neurogenetic Disease Studies

Dr. Lawrence T. Reiter at the University of Tennessee Health Science Center in Memphis, TN is conducting a research study to determine if neurons can be grown from the dental pulp of individuals with various neurogenetic syndromes including chromosomal duplications and deletions of human chromosome 15q, including PWS. These neurons will be valuable tool in understanding the differences between PWS and non-PWS, as well as for testing potential therapeutics.

Phase 2 Trial to Evaluate Safety & Efficacy of RM-493 in Obese Patients With Prader-Willi Syndrome

NO LONGER RECRUITING

Phase 3 Trial of ZGN-440 (Beloranib) in Overweight or Obese Subjects With Prader-Willi Syndrome (bestPWS)

UPDATE:  This study was terminated. Zafgen has decided to cease development of Beloranib due to high risk of thrombotic events.  See the letter from Zafgen to the PWS community.

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