Registration Opens January 2018
The Annual FPWR Conference is a powerful experience combining education, networking and community-building. Learn the latest in PWS research from experts in the field and have the opportunity to engage one-on-one with the researchers that have a deep interest in bringing treatments to market for our children. In addition to presentations by PWS clinical experts, you will learn the latest in clinical trials and updates from the most promising research studies.
- To Be Announced
Thursday, October 4th*
FPWR Scientific Day 9 am – 5 pm
Friday, October 5th
New Parent Session Pre-Conference Event** 9 am – 11 am
Conference Sessions 1 pm – 5 pm
Welcome Reception TBD
Saturday, October 6th
Age Group Breakfast 7:30 am – 9:00 am
Conference Sessions 9:00 am – 5:00 pm
Detailed agendas will be available Summer 2018
* Join us for FPWR’s Scientific Day!
Thursday, October 4th, 9:00am-5:00pm
An exciting day of the latest breakthroughs in Prader-Willi syndrome research including genetics, molecular mechanisms, PWS models, metabolism, therapeutic development, clinical care, and clinical trials. Presentations will be given for a scientific audience (researchers an academics). Parents are welcome to attend. Learn more.
** New Parent Session
This special pre-conference session the morning of Friday, October 5th is for parents who have received the PWS diagnosis within the last 24 months. Meet other new families and learn from parents who are on this same journey. Space is limited, please RSVP during ticket purchase.
Registration opens January 2018 and ends on Monday, October 1, 2018. Registration is available onsite for a $25 fee.
Infants and young children are FREE when they attend conference sessions with their parents. On-site childcare will NOT be available.