Projects

Under the guidance of our Scientific Advisory Board through a carefully managed grants process, FPWR selects research projects based on the collaborative input of researchers and parents, choosing projects that are both scientifically meritorious and highly relevant for individuals with PWS and their families.

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Big Data for Prader Willi Syndrome

Funded Year: 2026

Summary Do GLP-1s work for PWS? Drs. Rubenstein and Stokes are surveying health records from 14,000 individuals living with PWS from 2014 to 2025 to identify which GLP-1s have been prescribed, how well they worked, and if there were any side effects.

North American Clinical Care Consensus for Neonates and Infants with Prader-Willi Syndrome: Delphi Consensus Proposal

Funded Year: 2026

Summary Drs. Roy and Bird will convene a panel of experts to develop guidelines for clinical care of neonates and infants with PWS.

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