Lived Experiences of Teens and Adults Who Grew Up With a Sibling Diagnosed With Prader Willi Syndrome
Funded Year: 2026Summary The PWS diagnosis impacts every person in the family. It changes family dynamics and relationships as well as every interaction with food. Siblings can be particularly vulnerable to the unavoidable stress related to managing and caring for a person with PWS. They may experience impacts in multiple aspects of their lives, including their...
