2025 FPWR Impact Report

Learn about FPWR’s impact and the strategic investments accelerating research toward better treatments for people with Prader-Willi syndrome and Schaaf-Yang syndrome. Swipe to explore our report or download a copy below.

2025 FPWR Impact Report page featuring a leadership message and photos of Susan Hedstrom and Theresa Strong

Impact Report page highlighting $4 million invested in research, with photo of friends at One Small Kick fundraising event

Impact Report page about FPWR’s clinical research network, showing 36 sites, 100+ patients enrolled, and a photo of a smiling young girl.

Impact Report page on precision medicine and genomics, with photo of a smiling young boy and a family standing together outdoors.

Impact Report page on genetic therapy research, with photo of a smiling baby and a woman seated at a table

Impact Report page about clinical trial innovation, with photo of mom and daughter using a laptop together.

Impact Report page on tracking real-world outcomes after FDA approval, with image of a smiling boy giving a thumbs up

Impact Report page about the Global Registry, featuring a father and his young son wearing baseball caps

Impact Report page highlighting 19 funded research projects, with photo of a researcher presenting and a smiling young woman.

Impact Report page listing funded research projects, with photo of a woman smiling at a baby.

Impact Report page describing directed research initiatives and clinical studies.

Impact Report page showing research investment breakdown and a child in a ‘One Small Step’ shirt running outside.

Download the Annual Report

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

Contact Us

Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

FPWR
440 N Barranca Ave #3620
Covina, CA 91723