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For Families

First Steps

A Parent's Guide to Prader-Willi Syndrome

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ABOUT PWS

Newly Diagnosed with PWS

What is PWS?

Diagnosis and Treatment

CHALLENGES & TREATMENTS

Hyperphagia

Puberty & Sexual Development

Mental Health

Growth Hormone Therapy

Genetic Therapy for PWS

RESOURCES

Downloads & Videos

Parents Guide for Supporting Siblings

Improving Social Skills

Mindfulness for Stress Management

PWS-CLIC: Find a Clinician Near You

Therapeutics in Development

RECURSOS EN ESPANOL

Recursos en Espanol

SCHAAF-YANG SYNDROME

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Stories of Hope
Check out our Stories of Hope
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For Researchers

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FUNDING

Funding Opportunities

Funding Priorities

Funded Projects

Research Publications

RESOURCES

PWS Patient Registry

SYS Patient Registry

PWS & SYS Biobank

PWS & SYS Models

Annual Research Symposium

COLLABORATION

Venture Philanthropy

Clinical Trials Consortium

Clinical Investigation Collaborative
Our Foundation

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OUR MISSION

Who We Are

Our Team

Our Impact

Our Research Strategy

GOVERNANCE

Board of Directors

Scientific Advisory Board

Financials
Take Action

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Planned Giving

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INSPIRE

Share Your Story

MEETINGS

Annual Conference

FUNDRAISE

Become a Fundraiser

Find an Event

Fundraising Resources

PARTICIPATE IN RESEARCH

Join the Registry

Participate in Clinical Trials

Participate in Research

Donate Brain Tissue

Review Our Grants

Complete or update surveys in the Global PWS Registry ➜

Go to Registry
News

Donate

Join Us

For Families

First Steps

A Parent's Guide to Prader-Willi Syndrome

DOWNLOAD

ABOUT PWS

Newly Diagnosed with PWS

What is PWS?

Diagnosis and Treatment

CHALLENGES & TREATMENTS

Hyperphagia

Puberty & Sexual Development

Mental Health

Growth Hormone Therapy

Genetic Therapy for PWS

RESOURCES

Downloads & Videos

Parents Guide for Supporting Siblings

Improving Social Skills

Mindfulness for Stress Management

PWS-CLIC: Find a Clinician Near You

Therapeutics in Development

RECURSOS EN ESPANOL

Recursos en Espanol

SCHAAF-YANG SYNDROME

SYS Home

Stories of Hope
Check out our Stories of Hope
Read Now →
For Researchers

Sign up for our Research Newsletter →

SUBSCRIBE

FUNDING

Funding Opportunities

Funding Priorities

Funded Projects

Research Publications

RESOURCES

PWS Patient Registry

SYS Patient Registry

PWS & SYS Biobank

PWS & SYS Models

Annual Research Symposium

COLLABORATION

Venture Philanthropy

Clinical Trials Consortium

Clinical Investigation Collaborative
Our Foundation

Stay Up To Date

Receive blog notifications for the latest from our foundation.

SUBSCRIBE

OUR MISSION

Who We Are

Our Team

Our Impact

Our Research Strategy

GOVERNANCE

Board of Directors

Scientific Advisory Board

Financials
Take Action

DONATE

Donate Now

Schedule a Monthly Gift

Planned Giving

More Ways to Give

INSPIRE

Share Your Story

MEETINGS

Annual Conference

FUNDRAISE

Become a Fundraiser

Find an Event

Fundraising Resources

PARTICIPATE IN RESEARCH

Join the Registry

Participate in Clinical Trials

Participate in Research

Donate Brain Tissue

Review Our Grants

Complete or update surveys in the Global PWS Registry ➜

Go to Registry
News

Information and Resources

What is PWS?

Newly Diagnosed? Start Here.

FPWR's Research

Resource Library

Connect with FPWR

FPWR News & Stories

Subscribe to our Newsletter

Events

Family Conference 2026

Events Calendar

Move PWS Research Forward

The Global PWS Registry

PWS Clinical Trials

Explore Fundraising

Donate

Schaaf-Yang Syndrome

SYS Research & Resources

Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi and Schaaf-Yang syndromes through the advancement of research and therapeutic development.

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FPWR (federal tax id 31-1763110) is a 501(c)(3) nonprofit organization.

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