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Two Moms, 5 Years and $1.7M for PWS Research

Becky McWilliams and Sam Chipetz are a force to be reckoned with, hosting walks, galas and other activities that have raised over $1.7 million for PWS research!

Becky McWilliams and Samantha (Sam) Chipetz are a force to be reckoned with! In addition to managing successful careers and juggling a family, therapy appointments and play dates, these two hard working moms have been fundraising for PWS research for more than 5 years! Dedicated to finding treatments for the challenges that their sons, Brandon and Kieran, face on a daily basis, Sam and Becky have hosted walks, galas and other fundraising activities which have collectively raised over $1.7 million! 


Most recently, Sam and Becky hosted their fourth Live Life Full Gala at the Punchline, Philadelphia with more than 200 supporters in attendance. The energy was amazing, the music got you grooving and a guest performance by the Philadelphia Eagles Drumline definitely topped off the night! With the support of the planning and honorary committee, this event raised over $170,000 for PWS Research.






 “What an amazing evening raising money for our beautiful children. Feeling so much love & gratitude for everyone in that room, supporting our cause and helping to push Prader-Willi Syndrome research forward. Grateful doesn't even begin to explain it.” -Rebecca McWilliams & Samantha Chipetz

We are so thankful to these moms on a mission! To Sam, Becky, and all of our volunteers who work so hard to drive research further, THANK YOU!

thank you

 The Foundation for Prader-Willi Research would like to express our immense gratitude to the hosts, committee, sponsors, donors, and attendees for their generosity and support at our Live Life Full, Philadelphia Gala in December.

Interested in hosting a fundraising event of your own? We are here to help! Please contact Jacqueline Mizon.


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Topics: Stories of Hope

Susan Hedstrom


Susan Hedstrom is the Executive Director for the Foundation for Prader-Willi Research. Passionate about finding treatments for PWS, Susan joined FPWR in 2009 shortly after her son, Jayden, was diagnosed with Prader-Willi Syndrome. Rather than accepting PWS as it has been defined, Susan has chosen to work with a team of pro-active and tireless individuals to accelerate PWS research in order to change the future of PWS. Inspired by her first FPWR conference and the team of researchers that were working to find answers for the syndrome, she joined the FPWR team in 2010 and led the development of the One SMALL Step walk program. Under Susan’s leadership, over $15 million has been raised for PWS related research.