Your Child Can Do Anything! Don't Limit Them

YourChildCanDoAnythingDontLimitThem.jpgA special contribution by guest blogger Jennifer Hannabass

Jennifer shared her story via our Stories of Hope questionnaire.

How has your child exceeded your expectations?

Every day!

Who has helped you in your PWS journey?

My family and friends.

Describe a time you surprised yourself with your ability to do the impossible.

Just fighting for my son, for therapies and other medical stuff.

What would you say to a parent whose child has recently been diagnosed with PWS?

Your child can do anything! Don't limit them.

What gives you hope for the future?

Knowing that the research being done now will help my child's future.

What are you thankful for?

All of the therapists, teachers and family support.

What positive life lessons have you learned from having a child with PWS?

Nothing is impossible, and they will prove everyone wrong.

What does this quote mean to you?:

“Until you have a kid with special needs, you have no idea of the depth of your strength, tenacity and resourcefulness.”

When you have a regular child, you already know that they will reach their goals, no question. When you have a special needs child, every milestone is a blessing, and no one understands you except other special needs parents.

What does this quote mean to you?:

“Most people see what is, and never see what can be.”

They only see the disability, not the person. They will only judge by looks and not by personality.

Do you have a story of hope to share with others about your experiences with PWS? Send it to us!

Understanding PWS - Slide Deck

Topics: Stories of Hope

Susan Hedstrom


Susan Hedstrom is the Executive Director for the Foundation for Prader-Willi Research. Passionate about finding treatments for PWS, Susan joined FPWR in 2009 shortly after her son, Jayden, was diagnosed with Prader-Willi Syndrome. Rather than accepting PWS as it has been defined, Susan has chosen to work with a team of pro-active and tireless individuals to accelerate PWS research in order to change the natural history of PWS. Inspired by her first FPWR conference and the team of researchers that were working to find answers for the syndrome, she hosted her first One SMALL Step walk in 2010 and began the development of the One SMALL Step walk program which now raises over $1.5 million a year for PWS research.