This 8-week telehealth (remote) intervention program focuses on building play skills, emotional understanding and regulation, and social skills. The study involves two in-person visits, one at the beginning and one at the end, that would be conducted in the family's local area and then the 8-week intervention, which is all done via remote videoconferencing.
Preliminary findings show that preschoolers and school-age children with PWS show difficulties in social cognitive abilities, such as engaging in individual and peer play, emotional understanding, and social skills such as turn taking and engaging with peers. There is also evidence to suggest that a preschool parent training program could help to improve quality of parent-child interactions and could decrease problem behaviors. Direct remote intervention with school-age children with PWS may increase emotional expression, quality of imaginative play, and overall social cognitive skills, while decreasing challenging behavior. A combination of remotely delivered parent-training and direct behavioral intervention could potentially yield positive emotional, social, and behavioral results for preschool and school-age children with PWS. Continuing to provide these interventions to children with PWS and their families will help us better understand what difficulties these children may face in social cognitive skills and how we can best treat them.
The Research Team at Case Western are recruiting patients for 2 studies. Patients are also needed for a study developing objective biomarkers of hyperphagia. This study, using eye tracking technology will be used to measure how children process images of food vs. objects. The aim of this study to to determine if eye tracking can help us better understand and measure hyperphagia objectively. For this study, both children with PWS and neurotypically developing peers are needed, ages 3-12. This study is being done in collaboration with the team at Vanderbilt University. Learn more >>
The Team will be traveling to the greater Chicago Area the end of July for families who would like to participate in either of these studies.
For more information about enrolling in the PRETEND study, please contact the PRETEND team at firstname.lastname@example.org or 216‐368‐3471.