There is limited research that has interviewed siblings to get an in-depth perspective of what it is/was like for them to live with a brother or sister with Prader-Willi Syndrome. Further research will allow for siblings to be better-understood and provided with adequate resources and support that they may not be currently receiving.
Interviews will be conducted over the phone with the primary researcher and should take approximately 30- 45 minutes. Participation is voluntary, anonymous, and confidential.
Additional details can be found in the Sibling Study Recruitment Flyer
Please contact Elana Wishnefsky at firstname.lastname@example.org or (872) 251-1015