Upcoming Events

FPWR Annual Conference

FPWR's Annual Conference is a powerful experience combining education, networking and community-building. Learn about the latest progress being made in PWS research and updates on PWS clinical trials, as well as learn more about the latest strategies to manage symptoms associated with PWS.

Annual PWS Research Symposium

An exciting event featuring the latest breakthroughs in PWS research including genetics, molecular mechanisms, PWS models, metabolism, therapeutic development, clinical care, and clinical trials. Presentations will be given for a scientific audience. Parents are welcome to attend.

Take One SMALL Step in 2020

  One SMALL Step events demonstrate the power of our community working together to find treatments for PWS. These volunteer driven events are held across North America by community members who want to accelerate PWS research and find treatments for our loved ones with PWS. 

Live Life Full Chicago Gala

Dear Supporters, On behalf of everyone at the Foundation for Prader-Willi Research, our hearts go out to all those impacted by COVID-19—this includes not only those diagnosed with the virus, but also their friends and family, those whose jobs and schools have been impacted and so many more. The...

2020 I Gotta Guy Sausage Festival

    Join us for an evening of sausage tastings, beer, wine, music, great food, entertainment, and so much more. All proceeds from this event benefit the Foundation for Prader-Willi Research and will be invested in scientific studies that seek to improve the lives of those with Schaaf-Yang syndrome....