Upcoming Events

FPWR Annual Conference

FPWR's Annual Conference is a powerful experience combining education, networking and community-building. Learn about the latest progress being made in PWS research and updates on PWS clinical trials, as well as learn more about the latest strategies to manage symptoms associated with PWS.

Annual PWS Research Symposium

An exciting day of the latest breakthroughs in PWS research including genetics, molecular mechanisms, PWS models, metabolism, therapeutic development, clinical care, and clinical trials. Presentations will be given for a scientific audience. Parents are welcome to attend.

Chantilly Tennis Bash


Take One SMALL Step in 2019

  One SMALL Step events demonstrate the power of our community working together to find treatments for PWS. These events are held all across North America by our amazing community members.   2019 One SMALL Step Events (Check back for updates!) Date   Location 2.17   Estero, FL 2.24   San Marcos, CA...

PWS Clinical Trial Fair & One SMALL Step Walk

  Representatives from 3 PWS Clinical Trials will be in attendance at our upcoming One SMALL Step walks in Deerfield, IL and Columbus, OH. Ask your questions directly and get the information you need to decide if participating in a trial is right for you and your family! Walk Details One SMALL...

6th Annual Fighter Jhett Classic

Join us for the 6th Annual Fighter Jhett Classic! Saturday August 3rd, 2019 Winding Ridge Golf Club 5450 Bogey Dr Indianapolis, IN  46235 Shotgun Start at 12:30pm *Opening Remarks 12:15pm

2019 I Gotta Guy Sausage Festival


Harvesting Hope 2019


Harvesting Hope 2019 Sponsors


Live Life Full Lewistown (2019)


2019 Pins for PWS