Upcoming Events

FPWR Annual Conference

FPWR's Annual Conference is a powerful experience combining education, networking and community-building. Learn about the latest progress being made in PWS research and updates on PWS clinical trials, as well as learn more about the latest strategies to manage symptoms associated with PWS.

Annual PWS Research Symposium

An exciting day of the latest breakthroughs in PWS research including genetics, molecular mechanisms, PWS models, metabolism, therapeutic development, clinical care, and clinical trials. Presentations will be given for a scientific audience. Parents are welcome to attend.

Clinical Trial Webinar: DCCR for the treatment of hyperphagia in PWS

Join us Tuesday February, 26th at 2 PM Eastern for a LIVE webinar with Soleno Therapeutics.    Soleno Therapeutics in now enrolling patients ages 4 to 65 for their study of DCCR for the treatment of hyperphagia. If you are interested in learning more about this trial, join us for a live 20-minute...

Clinical Trial Webinar: Carbetocin for the treatment of PWS

Join us Tuesday, March, 19th at 2 PM Eastern for a LIVE webinar with Levo Therapeutics.    Levo Therapeutics in now enrolling patients ages 7 to 18 for their study of Carbetocin for the treatment of Prader-Willi syndrome. If you are interested in learning more about this trial, join us for a live...