Upcoming Events

Shop for PWS Research

This holiday season FPWR is partnering with select vendors to help raise funds for PWS research. When you shop, a portion of your purchase will help support FPWR's research programs as we work towards treatments for our loved ones with PWS.

Annual PWS Research Symposium

An exciting event featuring the latest breakthroughs in PWS research including genetics, molecular mechanisms, PWS models, metabolism, therapeutic development, clinical care, and clinical trials. Presentations will be given for a scientific audience. Parents are welcome to attend.

FPWR Annual Conference

FPWR's Annual Conference is a powerful experience combining education, networking and community-building. Learn about the latest progress being made in PWS research and updates on PWS clinical trials, as well as learn more about the latest strategies to manage symptoms associated with PWS.

Take One SMALL Step in 2021

  One SMALL Step events demonstrate the power of our community working together to find treatments for PWS. These volunteer driven events are held across North America by community members who want to accelerate PWS research and find treatments for our loved ones with PWS. 

Rare Disease Day 2021

More than 7,000 unique rare diseases are recognized around the world. Each year, on Rare Disease Day, our unique rare diseases come together to celebrate each other.  This year, on February 28th, we are coming together in unity to celebrate our loved ones with PWS and SYS for Rare Disease Day 2021.

Webinar: Keeping Your Loved One with PWS Safe on the Internet

Join us for a 45-minute webinar on Wednesday, February 24th, 12pm PT, to learn more about steps you can take to keep your loved one safe online.  Elizabeth Roof, Senior Research Specialist at Vanderbilt University, and Lisa Matesevac, PATH Study Coordinator and mom to a teenager with PWS, will...