Upcoming Events

Annual PWS Research Symposium

An exciting event featuring the latest breakthroughs in PWS research including genetics, molecular mechanisms, PWS models, metabolism, therapeutic development, clinical care, and clinical trials. Presentations will be given for a scientific audience. Parents are welcome to attend.

FPWR Annual Conference

FPWR's Annual Conference is a powerful experience combining education, networking and community-building. Learn about the latest progress being made in PWS research and updates on PWS clinical trials, as well as learn more about the latest strategies to manage symptoms associated with PWS.

Take One SMALL Step in 2021

  One SMALL Step events demonstrate the power of our community working together to find treatments for PWS. These volunteer driven events are held across North America by community members who want to accelerate PWS research and find treatments for our loved ones with PWS. 

8th Annual Fighter Jhett Classic

2021 I Gotta Guy Sausage Festival

The I Gotta Guy Sausage Festival will be back this year! Save The Date For August 2021! We are working hard to put together and amazing experience and look forward to providing you the details in the next few weeks! Please continue to visit our website for updates and sponsorship opportunities.  We...

Pouring For A Purpose: A Mixology Experience

Looking for a little fun? Want to up your cocktail game before summer? Join expert mixologist Rebecca Pinnell for this 90-minute spring-themed mixology course and learn how to make 2 delicious cocktails (or mocktails) from the comfort of your own kitchen!  Join us Thursday, May 13th at 7:00 EST for...

WEBINAR: What's Happening In PWS Research? Spring Research Update.

Join us May 26th at 12 PM Eastern for a LIVE webinar with FPWR Director of Research Programs, Theresa Strong.  Learn more about the projects recently funded through the FPWR Grants Program. Theresa Strong, FPWR Director of Research Programs, will share details on each project, as well as outcomes...