Upcoming Events

Annual PWS Research Symposium

An exciting event featuring the latest breakthroughs in PWS research including genetics, molecular mechanisms, PWS models, metabolism, therapeutic development, clinical care, and clinical trials. Presentations will be given for a scientific audience. Parents are welcome to attend.

FPWR Annual Conference

FPWR's Annual Conference is a powerful experience combining education, networking and community-building. Learn about the latest progress being made in PWS research and updates on PWS clinical trials, as well as learn more about the latest strategies to manage symptoms associated with PWS.

Take One SMALL Step in 2020

  One SMALL Step events demonstrate the power of our community working together to find treatments for PWS. These volunteer driven events are held across North America by community members who want to accelerate PWS research and find treatments for our loved ones with PWS. 

2020 I Gotta Guy Sausage Festival

Thank you for supporting the 2020 Virtual I Gotta Guy Sausage Festival! Donations are still being accepted at the link below. Warmest Regards,  The I Gotta Guy Sausge Festival Hosts      

7th Annual Fighter Jhett Classic

Registration for this event is now closed. Donations accepted below. Thank you for your generosity!  Saturday August 8th, 2020 Winding Ridge Golf Club 5450 Bogey Drive Indianapolis, Indiana 46235 Shotgun Start at 12:30pm *Opening Remarks 12:15pm Silent Auction: If you have items that you would like...

Schaaf-Yang Virtual Conference

Join us for a half-day virtual conference for our Schaaf-Yang Families! This FREE conference features presentations by Dr. Ryan Potts, Dr. Rachel Wevrick and Dr. Christian Schaaf. Learn more about the SYS research landscape, next steps in SYS research and clinical aspects of SYS. Time will be...

2020 Pins for PWS