Upcoming Events

FPWR Annual Conference

FPWR's Annual Conference is a powerful experience combining education, networking and community-building. Learn about the latest progress being made in PWS research and updates on PWS clinical trials, as well as learn more about the latest strategies to manage symptoms associated with PWS.

Annual PWS Research Symposium

An exciting event featuring the latest breakthroughs in PWS research including genetics, molecular mechanisms, PWS models, metabolism, therapeutic development, clinical care, and clinical trials. Presentations will be given for a scientific audience. Parents are welcome to attend.

Take One SMALL Step in 2020

  One SMALL Step events demonstrate the power of our community working together to find treatments for PWS. These volunteer driven events are held across North America by community members who want to accelerate PWS research and find treatments for our loved ones with PWS.  Upcoming Events will be...

Clinical Trial Webinar: Oxytocin for the treatment of Hyperphagia in PWS

Join us Wednesday February, 26th at 11 AM PT |  2 PM ET for a LIVE webinar with Dr. Eric Hollander.    A Phase 2 clinical trial of intranasal oxytocin is currently enrolling patients ages 5 to 17 years old. If you are interested in learning more about this trial, join us for a live 20-minute...

Rare Disease Day 2020

Show Your Stripes! The Zebra, known for its distinctive black and white stripes, has become the official symbol of rare disease. The unique stripes of the Zebra are what make each individual distinct. Despite there being more than 7,000 unique rare diseases, there are many commonalities that unite...

Clinical Trial Webinar: Cannabidivarin (CBDV) as a treatment for PWS

Join us Monday March, 2nd at 11 AM PT |  2 PM ET for a LIVE webinar with Dr. Eric Hollander.    A Phase 2 clinical trial of CBDV is now enrolling patients ages 5 to 30 years old. If you are interested in learning more about this trial, join us for a live 20-minute webinar to learn more about the...

2020 I Gotta Guy Sausage Festival

    Join us for an evening of sausage tastings, beer, wine, music, great food, entertainment and so much more in Chicago, IL. All proceeds from this event benefit the Foundation for Prader-Willi Research and will be invested in scientific studies that seek to improve the lives of those with...

Live Life Full Chicago Gala

Cant On Thursday, April 16th we are proud to be hosting the 3rd Annual Live Life Full Chicago Event, benefiting the Foundation for Prader-Willi Research. We hope that you will join us for an incredible evening of live music, a premium open bar, delicious food, and an incredible auction!