Upcoming Events

Annual PWS Research Symposium

An exciting event featuring the latest breakthroughs in PWS research including genetics, molecular mechanisms, PWS models, metabolism, therapeutic development, clinical care, and clinical trials. Presentations will be given for a scientific audience. Parents are welcome to attend.

FPWR Annual Conference

FPWR's Annual Conference is a powerful experience combining education, networking and community-building. Learn about the latest progress being made in PWS research and updates on PWS clinical trials, as well as learn more about the latest strategies to manage symptoms associated with PWS.

Take One SMALL Step in 2021

  One SMALL Step events demonstrate the power of our community working together to find treatments for PWS. These volunteer driven events are held across North America by community members who want to accelerate PWS research and find treatments for our loved ones with PWS. 

8th Annual Fighter Jhett Classic

2021 I Gotta Guy Sausage Festival

You're Invited To Join Us For The Party Of The Year! Thursday, August 19th, 2021 Galleria Marchetti Chicago, Illinois In-Person Event: 6:00pm-10:00pm Virtual Live Stream: TBD- Details Coming Soon We are thrilled to announce that the I Gotta Guy Sausage Festival will be back both in person and...

The 8th Annual Pins for PWS