An exciting event featuring the latest breakthroughs in PWS research including genetics, molecular mechanisms, PWS models, metabolism, therapeutic development, clinical care, and clinical trials. Presentations will be given for a scientific audience. Parents are welcome to attend.
FPWR's Annual Conference is a powerful experience combining education, networking and community-building. Learn about the latest progress being made in PWS research and updates on PWS clinical trials, as well as learn more about the latest strategies to manage symptoms associated with PWS.
One SMALL Step events demonstrate the power of our community working together to find treatments for PWS. These volunteer driven events are held across North America by community members who want to accelerate PWS research and find treatments for our loved ones with PWS.
We are thrilled to announce a safe and fun way for us to connect as a community- and even nationwide! The I Gotta Guy Sausage Festival Is Going Virtual For The First Time Ever. We cannot wait to share this incredible experience with you! The fun will continue… from our backyard to yours! We need...
Please Join Us For The 7th Annual Fighter Jhett Classic! Saturday August 8th, 2020 Winding Ridge Golf Club 5450 Bogey Drive Indianapolis, Indiana 46235 Shotgun Start at 12:30pm *Opening Remarks 12:15pm Any contribution is appreciated. DONT LET JHETT FIGHT ALONE! Not a Golfer? Come join us for...
