Upcoming Events

FPWR Annual Conference

FPWR's Annual Conference is a powerful experience combining education, networking and community-building. Learn about the latest progress being made in PWS research and updates on PWS clinical trials, as well as learn more about the latest strategies to manage symptoms associated with PWS.

Annual PWS Research Symposium

An exciting day of the latest breakthroughs in PWS research including genetics, molecular mechanisms, PWS models, metabolism, therapeutic development, clinical care, and clinical trials. Presentations will be given for a scientific audience. Parents are welcome to attend.

Clinical Trial Webinar: Carbetocin for the treatment of PWS

Join us Tuesday, March, 19th at 2 PM Eastern for a LIVE webinar with Levo Therapeutics.    Levo Therapeutics in now enrolling patients ages 7 to 18 for their study of Carbetocin for the treatment of Prader-Willi syndrome. If you are interested in learning more about this trial, join us for a live...

Take One SMALL Step in 2019

  One SMALL Step events demonstrate the power of our community working together to find treatments for PWS. These events are held all across North America by our amazing community members.  A list of One SMALL Step events can be found at onesmallstep.fpwr.org 

Austin Community Engagement Event 2019

With so much happening in PWS research these days, it can be hard to keep up! Join us for a meet and greet style event with FPWR Executive Director, Susan Hedstrom, to connect with other PWS parents and to learn first-hand about new and exciting FPWR projects, promising and hopeful clinical trials,...

Clinical Trial Webinar: Livoletide for the Treatment of PWS

Join us Tuesday April, 16th at 11 AM PT |  2 PM ET for a LIVE webinar with Millendo Therapeutics.    Millendo Therapeutics will soon be enrolling patients ages 8 to 65 for their study of Livoletide for the treatment of Prader-Willi syndrome. If you are interested in learning more about this trial,...