Upcoming Events

FPWR Annual Conference

FPWR's Annual Conference is a powerful experience combining education, networking and community-building. Learn about the latest progress being made in PWS research and updates on PWS clinical trials, as well as learn more about the latest strategies to manage symptoms associated with PWS.

Annual PWS Research Symposium

An exciting day of the latest breakthroughs in PWS research including genetics, molecular mechanisms, PWS models, metabolism, therapeutic development, clinical care, and clinical trials. Presentations will be given for a scientific audience. Parents are welcome to attend.

Take One SMALL Step in 2019

  One SMALL Step events demonstrate the power of our community working together to find treatments for PWS. These events are held all across North America by our amazing community members.  A list of One SMALL Step events can be found at onesmallstep.fpwr.org  2019 One SMALL Step Events (Check back...

3rd Annual Savannah Strong Charity Golf Classic


WEBINAR: FPWR Grants Update Spring 2019

Join us May 21st at 2 PM Eastern for a LIVE webinar with FPWR Director of Research Programs, Theresa Strong.  Learn more about the projects recently funded through the FPWR Grants Program. Theresa Strong, FPWR Director of Research Programs, will share details on each project, as well as outcomes...

DESTINY-PWS Prescreen Event & One SMALL Step Walk

Dr. Yanovski and colleagues from the National Institutes of Health will be joining us at our One SMALL Step walk on June 1st to prescreen potential participants for the DESTINY PWS DCCR Clinical Trial. This trial is enrolling patients ages 4 and older who weigh a minimum of 66 lbs. Learn more about...

6th Annual Fighter Jhett Classic

Join us for the 6th Annual Fighter Jhett Classic! Saturday August 3rd, 2019 Winding Ridge Gold Club 5450 Bogey Dr Indianapolis, IN  46235 Shotgun Start at 12:30pm *Opening Remarks 12:15pm

2019 I Gotta Guy Sausage Festival


Harvesting Hope 2019