Get Involved

Everything we do, we can do because of YOU. Since our launch in 2013, we have invested over $13M into groundbreaking research. Nearly every dollar has come from affected families and their networks of relatives, friends, colleagues and neighbors. Do you want treatments, and a cure, for PWS? If so, we invite you to join Team FPWR and to play a vital role by fundraising for PWS research.

We can get there faster together.

Need a little inspiration? Watch this video.
Our loved ones with PWS work so hard for every achievement.
They don't give up. And neither will we.

Your Impact

2019 Impact Infographic

Fundraise For PWS Research

Getting Started

Anyone can fundraise for PWS research - parents, grandparents, brothers and sisters, aunts and uncles, or family friends. It can be as simple as setting up a fundraising page and sharing with your network through email and social media.  Or it can be an in-person event such as a gala, a happy hour, a picnic, or cocktails in your home. The options are limitless and we are here to help you every step of the way. We can help you with graphic design, save the dates/invitations, e-blasts, an event webpage and more. Set up your fundraising page today or contact to get started!

Let me help you get started!

Fundraise For PWS Research

Fundraiser Resources

Copy of Fundraising Download Covers (2)

How to Raise $200 in less than 10 days

Copy of Fundraising Download Covers

Impact 2019

Fundraise For PWS Research

Other Ways To Get Involved

There are many ways that YOU can get involved with the Foundation for Prader-Willi Research! No matter how big or how small, every effort helps us come closer to the day that our loved ones will lead FULL and independent lives.

Make a donation
Host a fundraiser
Celebrate with a Facebook Fundraiser
Send a donation request letter
Participate in a clinical trial
Participate as an advocate reviewer
Participate in the Global PWS Registry

Attend our annual conference 
Listen to a webinar
Make a planned gift

Have an idea for how you can get involved?
Contact us at!

2019 Annual Report

Fundraise For PWS Research


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