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    May is PWS Awareness Month

    Awareness matters. Action changes what’s possible.

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    May is PWS Awareness Month.

    It’s a time to share stories, build understanding, and accelerate the research our community is counting on.

    Awareness starts the conversation. Action moves it forward.

    Here are 3 simple ways you can take action for PWS this month:

     

    1. Raise Awareness

    Start by helping more people understand PWS and why research matters.

    • Share daily PWS facts – Follow us on social or sign up for daily fact emails to help raise awareness. Get the Facts>>

    • Update your profile picture – Show your support by adding a PWS Awareness Month frame to your profile picture. Profile Picture >>
    • Use a PWS Zoom background – Make your next virtual meeting an opportunity to educate others. Zoom Background >>

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    Join Our Awareness Month Email List to Get Your Daily Facts

    2. Complete Your Registry Surveys

    One of the most powerful ways you can drive progress is by participating in the Global PWS Registry. The FDA relies on well-documented data to approve new treatments, and the Registry provides the natural history data researchers need. Your participation helps shape the future of PWS care and ensures the voices of those living with PWS are heard. Take 10 minutes to complete or update your surveys today. Visit the Registry >>

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    Visit the Global PWS Registry

    Families are the driving force behind progress in PWS research. Every survey you complete in the Global PWS Registry adds to our collective undersanding of PWS. 

    Visit the Registry

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    3. Fundraise or Donate

    Everything we do is made possible by you. If you want to accelerate PWS research, there are two simple ways to take part: Donate or fundraise to support our efforts.

    Not sure where to start? Keep it simple:

    Launch a page - create and share your fundraiser in minutes. Become a Fundraiser >>

    Host a Jeans Day – Collect donations at work or school to wear jeans. Become a Fundraiser >>

    Fast for the 15th – Skip a meal on May 15 and donate what you would have spent. Download the Graphic >>


    How Do I Start Fundraising?

    No experience necessary! The easiest way to get started is to create a personalized fundraising page in just a few minutes.

    Need ideas or materials? Explore our fundraising toolkit for templates, graphics, and more.

    Our team is here to help.  Reach out at info@fpwr.org for support.

    Learn More About PWS

    Prader-Willi syndrome (PWS) is a genetic disorder that occurs in approximately one out of every 15,000 births. PWS affects males and females with equal frequency and affects all races and ethnicities. PWS is recognized as the most common genetic cause of life-threatening childhood obesity.

    Watch this short video to learn more about PWS, then click here to learn more >>