PWS Awareness Month

"I Believe ..."

PWS is the most common genetic cause of life-threatening childhood obesity. This May, during Prader-Willi Syndrome Awareness Month, people around the world who are affected by PWS are joining together to say: We believe. We believe in each other, so we're sharing our stories of hope. We believe in our communities, so we're raising awareness of PWS and how people can help. We believe research can change the future for our children, so we're fundraising to support a $26M 5-year plan to develop new treatments for PWS. In honor of Prader-Willi Syndrome Awareness Month, we ask you to show you believe in a positive future for all people with PWS by clicking one of the links below. By fundraising, donating, and spreading the word, you can help make that future possible.



When you set up a fundraising page, 
it's easy to reach out to family and friends!



Support our 5-year research plan to develop new treatments for PWS.



Post our beautiful graphics on social media and
raise #PWSawareness!

Latest Post

A Father's Story: Fighting the PWS Battle with Shared Love and Clear Vision

By guest blogger Adam Larson

Larson Family 2017 2An expecting father has crystal clear vision. You are at the moment when all you will ever amount to is about to be tested. All of your talents will be called upon and you feel in total controlNobody can really tell you anything in those final days counting down to the arrival of your child. No more advice. No more preparation. It is time and you know that with your help your child is going to achieve things that no generation of your family would have thought possible. This kid is going to succeed...



Special Events

Things To Do This Month 

  • Ditch your lunch. Choose one day to skip your lunch in honor of your loved one with PWS. Ask your friends, family and co-workers to join you and donate what they would have spent on lunch to PWS research.
  • Educate. Give a presentation at your child’s school or a group you belong to! Use this slide deck.
  • Get prepared. More than half a dozen clinical trials will open this year. Learn more about these opportunities and determine if they are right for your family.
  • Enroll or update your surveys in the Global PWS Registry

Need some more ideas to help you get started? Watch this short webinar


Receive a daily fact by email 

Sign up for our awareness month emails and you will receive a daily graphic with a PWS related fact to help spread awareness!

#PWSawareness 2018

Featured Video



Find more PWS resources here!

Customize Your Facebook Pic!

Facebook Profile Frames

Spread awareness with our Facebook Profile Frame! Here's how:

  • Hover over your profile picture
  • Click "update profile picture." 
  • Click "add frame"  & search for "Foundation for Prader-Willi Research".
  • Choose your frame