PWS is the most common genetic cause of life-threatening childhood obesity. This May, during Prader-Willi Syndrome Awareness Month, people around the world who are affected by PWS are joining together to say: We believe. We believe in each other, so we're sharing our stories of hope. We believe in our communities, so we're raising awareness of PWS and how people can help. We believe research can change the future for our children, so we're fundraising to support our 5-year plan to develop new treatments for PWS. In honor of Prader-Willi Syndrome Awareness Month, we ask you to show you believe in a positive future for all people with PWS by clicking one of the links below. By fundraising, donating, and spreading the word, you can help make that future possible.
By guest blogger Gillian Segall, 18 years
Graduating from high school is something that many kids and their parents take for granted. But I’m a kid with Prader-Willi Syndrome so my journey has been full of ups and downs. The “ups” have been amazing: I will be graduating in May, made my high school honor society, was named a “True Giant” for making my school a better place, and also qualified for state Special Olympics in swimming. But the “downs” have made it really hard to get here.
One of my biggest challenges was learning how to ... Read More >>
Prader-Willi syndrome (PWS) is a genetic disorder that occurs in approximately one out of every 15,000 births. PWS affects males and females with equal frequency and affects all races and ethnicities. PWS is recognized as the most common genetic cause of life-threatening childhood obesity. Learn more >>
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