May Is PWS Awareness Month
You Can Help Bring Awareness to Prader-Willi Syndrome!
May was established 'PWS Awareness Month' in 2019 when the House of Representatives passed Resolution 55. PWS Awareness Month is an opportunity for us to come together as a community, show our unity and strength, and help educate the world on PWS and our need for continued research to find treatments. Will you help us raise awareness of Prader-Willi syndrome and the need for treatments and a cure? Let us help you get started!
Sign up for our awareness month emails and you will receive a daily graphic with a PWS-related fact to help spread awareness!
Imagine a world where PWS doesn't hold back the dreams of our loved ones. You can help make it a reality. This May, a generous donor is matching all gifts up to $150,000, making it a great time to advocate through fundraising! Plus, for every $1,000 you raise between now and June 1, you'll receive a chance to win a pair of FPWR Conference tickets in Atlanta, September 27-28.
Why Should I Help Raise Funds for PWS Research?
How Do I Start Fundraising?
No experience necessary! One of the easiest ways to launch a customized fundraising page in minutes is by clicking here >> Become a Fundraiser, or, simply set up a Facebook fundraiser! Check out our fundraising resource page for templates, customizable graphics, and more!
Are you a parent or caregiver of a person with PWS? The #1 activity you can do to help advocate for your loved one is to participate in the Global PWS Registry. The Global PWS Registry is a powerful tool for the PWS community to advance understanding of PWS, areas of unmet need, standards of care, and new therapies. Data from the registry is shared back to the PWS community, used by researchers and scientists to advance PWS research, and has been the basis of our discussions with the FDA as we help them understand our community's need for treatments.
We encourage you to enroll in the registry and update your surveys annually. Get started today!
The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).
The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.
Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org
FPWR
440 N Barranca Ave #3620
Covina, CA 91723
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