PWS Awareness Month

"I Believe ..."

PWS is the most common genetic cause of life-threatening childhood obesity. This May, during Prader-Willi Syndrome Awareness Month, people around the world who are affected by PWS are joining together to say: We believe. We believe in each other, so we're sharing our stories of hope. We believe in our communities, so we're raising awareness of PWS and how people can help. We believe research can change the future for our children, so we're fundraising to support our 5-year plan to develop new treatments for PWS. In honor of Prader-Willi Syndrome Awareness Month, we ask you to show you believe in a positive future for all people with PWS by clicking one of the links below. By fundraising, donating, and spreading the word, you can help make that future possible.



When you set up a fundraising page, 
it's easy to reach out to family and friends!



Support our 5-year research plan to develop new treatments for PWS.



Post our beautiful graphics on social media and
raise #PWSawareness!

Story of Hope

A Glimpse Into the Life of a High School Senior, Who Also Has PWS.

By guest blogger Gillian Segall, 18 years

gillian5Graduating from high school is something that many kids and their parents take for granted. But I’m a kid with Prader-Willi Syndrome so my journey has been full of ups and downs. The “ups” have been amazing: I will be graduating in May, made my high school honor society, was named a “True Giant” for making my school a better place, and also qualified for state Special Olympics in swimming. But the “downs” have made it really hard to get here.

One of my biggest challenges was learning how to ... Read More >>


Learn More About PWS

Prader-Willi syndrome (PWS) is a genetic disorder that occurs in approximately one out of every 15,000 births. PWS affects males and females with equal frequency and affects all races and ethnicities. PWS is recognized as the most common genetic cause of life-threatening childhood obesity. Learn more >>

The 15 for 15 Challenge

You can help support research this year while improving your own health and wellbeing. Join us in supporting health and fitness with our 15 for 15 Challenge! Learn more >>

Things To Do This Month 

  • Ditch your lunch. Choose one day to skip your lunch in honor of your loved one with PWS. Ask your friends, family and co-workers to join you and donate what they would have spent on lunch to PWS research.
  • Educate. Give a presentation at your child’s school or a group you belong to! Use this slide deck.
  • Stay up to date. More than 500 patients are needed to fill clinical trials this year. Learn more about these opportunities and determine if they are right for your family.
  • Enroll or update your surveys in the Global PWS Registry
  • Fundraise! Join us as we work towards finding treatments for our loved ones with PWS. Need help getting started? Email

Need some more ideas to help you get started? Watch this short webinar


Receive A Daily PWS Fact By Email 

Sign up for our awareness month emails and you will receive a daily graphic with a PWS related fact to help spread awareness!

Fact Sign UP


Featured Video



Find more PWS resources here!

Customize Your Facebook Pic!

Facebook Profile Frames

Spread awareness with our Facebook Profile Frame! Here's how:

  • Hover over your profile picture
  • Click "update profile picture." 
  • Click "add frame"  & search for "Foundation for Prader-Willi Research".
  • Choose your frame



Our Message of Hope