May Is PWS Awareness Month
Turn awareness into action for Prader-Willi syndrome
May is PWS Awareness Month.
It’s a time to share stories, build understanding, and accelerate the research our community is counting on.
Awareness starts the conversation. Action moves it forward.
Start by helping more people understand PWS and why research matters.
Share daily PWS facts – Follow us on social or sign up for daily fact emails to help raise awareness. Get the Facts>>
Update your profile picture – Show your support by adding a PWS Awareness Month frame to your profile picture. Profile Picture>>
One of the most powerful ways you can drive progress is by participating in the Global PWS Registry. The FDA relies on well-documented data to approve new treatments, and the Registry provides the natural history data researchers need. Your participation helps shape the future of PWS care and ensures the voices of those living with PWS are heard. Take 10 minutes to complete or update your surveys today. Visit the Registry >>
Everything we do is made possible by you. If you want to accelerate PWS research, there are two simple ways to take part: Donate or fundraise to support our efforts.
Not sure where to start? Keep it simple:
📱Launch a page - create and share your fundraiser in minutes. Become a Fundraiser >>
🧡 Host an Orange Day – Collect donations at work or school to wear orange (or jeans). Become a Fundraiser >>
🍽 Fast for the 15th – Skip a meal on May 15 and donate what you would have spent. Download the Graphic >>
How Do I Start Fundraising?
No experience necessary! The easiest way to get started is to create a personalized fundraising page in just a few minutes.
Need ideas or materials? Explore our fundraising toolkit for templates, graphics, and more.
Our team is here to help.
Reach out at info@fpwr.org for support.
The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).
