FPWR maintains the latest clinical trial information so that you can stay abreast of trial opportunities. Some trials require in-person visits, while others can be completed remotely. Some trials are testing new drugs, while others are intervention (non-drug) or natural history studies. Details of...
Source: FPWR Blog
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Published: July 7 2025 - 12:34 PM
Did you know that swallowing issues are extremely common in babies with Prader-Willi syndrome (PWS)? A recent study from Cook Children’s Medical Center (CCMC) in Texas took a closer look—and what they found is something every clinician and parent of a child with PWS should know.
Source: FPWR Blog
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Published: July 7 2025 - 11:00 AM
Thanks to nearly 2,000 participants completing a collective 61,795 surveys, the Global PWS Registry continues to be a vital resource for the PWS community—adding to our body of knowledge, improving how we care for our loved ones, and helping inform and accelerate clinical trials.
Source: FPWR Blog
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Published: June 6 2025 - 09:00 AM
The FPWR research team recently published a new study that helps us better understand mood, general health, and life satisfaction in individuals with Prader-Willi syndrome (PWS). The findings are based on data collected through the Global PWS Registry using three widely accepted...
Source: FPWR Blog
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Published: June 6 2025 - 08:59 AM
What if the key to treating a rare genetic condition lies not just in whether a protein is present—but in where it ends up inside the cell? This is the case with the MAGEL2 protein, which plays a critical role in cell function and is missing or altered in two rare neurodevelopmental conditions:...
Source: FPWR Blog
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Published: May 5 2025 - 10:00 AM
