Schaaf-Yang Syndrome News

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

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Nicci Peterson

Nicci has been dedicated to community-building and advocacy work for years, even before the birth of her son, Will, in 2020. With a background in marketing and communications, Nicci co-founded a nonprofit focused on teaching technology and leadership to young girls in Lincoln, NE, an experience that deepened her passion for grassroots change. Today, she brings that same energy to her role at FPWR, where she specializes in community engagement. Nicci is a proud graduate of the University of Nebraska–Lincoln, where she earned a B.S. in Marketing.

New Research Reveals Important Insights about MAGEL2’s Function
FPWR-supported scientists have recently published four important studies that provide new insight into MAGEL2, the gene affected in Schaaf-Yang syndrome (SYS) and Prader-Willi syndrome (PWS). These studies represent an important step forward. To develop effective therapies, researchers first need to
GeneSYS Initiative Spotlighted on RARECast Podcast
FPWR’s Director of Research Programs, Dr. Theresa Strong, recently joined Daniel Levine on the RARECast podcast to discuss the GeneSYS initiative—FPWR’s translational research program focused on developing a targeted therapy for Schaaf-Yang syndrome (SYS). Below is a summary of the
Celebrating Rare Disease Day: Spotlight on Three Inspiring Families
With February 28 marking Rare Disease Day, we honor the courage, joy, and resilience of families living with Schaaf-Yang Syndrome (SYS). It’s a day to raise awareness, celebrate progress, and highlight the critical need for research and support for children
Connor's First Year: A Journey of Love and Milestones
In St. Petersburg, Florida, Chrissy and Matt Dickhaus are raising two little boys who bring light and joy into their lives every single day. Carson, age 3, is the proud big brother to Connor, who recently turned one. To celebrate,

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with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

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