FPWR Blog

In support of our mission to advance the development of new treatments for Prader-Willi syndrome... Read more >
Source: FPWR Blog | Published: June 6 2021 - 10:00 AM
  FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: June 6 2021 - 10:53 AM
In this 30‑minute video, Albena Patroneva from Harmony Biosciences explains what pitolisant is and... Read more >
Source: FPWR Blog | Published: June 6 2021 - 10:00 AM
For more than a decade, FPWR has partnered with families and other PWS groups (PWSA|USA, IPWSO) to... Read more >
Source: FPWR Blog | Published: June 6 2021 - 09:00 AM
In a continuation of our joint advocacy efforts supporting the full review of potential drugs for... Read more >
Source: FPWR Blog | Published: June 6 2021 - 04:15 AM
The Foundation for Prader-Willi Research announces our first round of Research Awards in 2021... Read more >
Source: FPWR Blog | Published: June 6 2021 - 09:00 AM
With your support, FPWR and PWSA | USA have been granted a meeting with the FDA, which will take... Read more >
Source: FPWR Blog | Published: June 6 2021 - 07:45 AM
Hyperphagia is a life-long concern for individuals with PWS and their caregivers. In a recently... Read more >
Source: FPWR Blog | Published: May 5 2021 - 12:00 PM
In this 60‑minute workshop, Melanie Silverman explains optimal nutrition for children and adults... Read more >
Source: FPWR Blog | Published: May 5 2021 - 09:00 AM
FPWR is pleased to announce the launch of an exciting new research study: the PWS Genome Project.... Read more >
Source: FPWR Blog | Published: May 5 2021 - 09:00 AM
Last fall, the PWS community was excited to see two drugs complete Phase III clinical trials: both... Read more >
Source: FPWR Blog | Published: May 5 2021 - 12:00 PM
In this 60‑minute workshop, Dr. Van Bosse discusses the diagnosis and treatment of orthopedic... Read more >
Source: FPWR Blog | Published: May 5 2021 - 09:00 AM
Since Soleno's announcement that the FDA will require an additional clinical trial before accepting... Read more >
Source: FPWR Blog | Published: April 4 2021 - 09:45 AM
Let's be frank: our loved ones, like all of us, are spending more and more time online. Some PWS... Read more >
Source: FPWR Blog | Published: April 4 2021 - 08:00 AM