FPWR Blog

The FPWR Genome Study, full title “Whole Genome and RNA Sequencing Analysis in Prader-Willi... Read more >
Source: FPWR Blog | Published: May 5 2024 - 09:30 AM
We are pleased to announce the recipients of our first round of grants for 2024, totaling more than... Read more >
Source: FPWR Blog | Published: May 5 2024 - 08:15 AM
PWS impacts many aspects of our children’s lives. The hallmark struggle for those affected by PWS... Read more >
Source: FPWR Blog | Published: May 5 2024 - 10:00 AM
FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: May 5 2024 - 09:05 AM
May marks Prader-Willi Syndrome (PWS) Awareness Month, shedding light on the complex genetic... Read more >
Source: FPWR Blog | Published: May 5 2024 - 08:30 AM
May is PWS Awareness Month. A time to raise awareness and advance research so we may find new... Read more >
Source: FPWR Blog | Published: April 4 2024 - 01:10 PM
In this one hour and 8-minute video, Dr. Theresa Strong, FPWR’s Director of Research Programs,... Read more >
Source: FPWR Blog | Published: April 4 2024 - 08:45 AM
Individuals with PWS often exhibit a variety of self-injurious behaviors, and one of the most... Read more >
Source: FPWR Blog | Published: April 4 2024 - 08:45 AM
In this 74‑minute video, Dr. Joanna Wrede, a pediatric sleep neurologist at Seattle Children’s... Read more >
Source: FPWR Blog | Published: April 4 2024 - 08:45 AM
Harmony Biosciences has initiated its Phase 3 study of Pitolisant and is now enrolling individuals... Read more >
Source: FPWR Blog | Published: April 4 2024 - 07:36 AM
Neuren Pharmaceuticals is now enrolling children with PWS in a phase 2 clinical trial to measure... Read more >
Source: FPWR Blog | Published: March 3 2024 - 08:30 AM
Join us September 27–28 for our annual gathering of movers, shakers, thinkers, and doers at this... Read more >
Source: FPWR Blog | Published: March 3 2024 - 08:45 AM
In this 30‑minute video, Patrice Carroll, Elizabeth Roof, and Dr. Deepan Singh discuss strategies... Read more >
Source: FPWR Blog | Published: March 3 2024 - 08:30 AM
The PWS-Clinical Investigation Collaborative (PWS-CLIC) is a network of PWS clinical experts,... Read more >
Source: FPWR Blog | Published: March 3 2024 - 08:45 AM