Clinical Care Perspectives on PWS

The Center for Prader-Willi Syndrome at The Children’s Institute of Pittsburgh is hosting a Prader-Willi clinical conference on May 29, 2015. 

The conference is designed for pediatric endocrinologists, pediatricians, family practitioners, child psychiatrists, nurses, therapists, clinical nutritionists and other medical professionals interested in the management of patients with Prader-Willi Syndrome.  The conference is eligible for CEUs as well. You can learn more about this opportunity by clicking the downloadable brochure below.  
Clinical Care Perspectives on PWS

Topics: Research

Susan Hedstrom


Susan Hedstrom is the Executive Director for the Foundation for Prader-Willi Research. Passionate about finding treatments for PWS, Susan joined FPWR in 2009 shortly after her son, Jayden, was diagnosed with Prader-Willi Syndrome. Rather than accepting PWS as it has been defined, Susan has chosen to work with a team of pro-active and tireless individuals to accelerate PWS research in order to change the natural history of PWS. Inspired by her first FPWR conference and the team of researchers that were working to find answers for the syndrome, she hosted her first One SMALL Step walk in 2010 and began the development of the One SMALL Step walk program which now raises over $1.5 million a year for PWS research.

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