Clinical Trials 2014 What You Need to Know - Webinar Summary

Over 450 excited parents and community members registered for the Clinical Trials Webinar January 19th. Theresa Strong and Jennifer Miller outlined an overview of the drug development process, discussed what you can expect when you participate in a clinical trial and shared a list of current and anticipated PWS clinical trials. Twelve clinical trials were shared as ongoing, upcoming or planned for the next year! FPWR is dedicated to providing our community with the latest information available on clinical trials. A list of clinical trials that are actively recruiting participants is available on our FPWR website along with a link to take you directly to that study on the site. We will update this information when new PWS trials open. 

Download Clincial Trials 2014: What You Can Expect (slides only) and Questions and Answers from the webinar.

Topics: Research

Susan Hedstrom


Susan Hedstrom is the Executive Director for the Foundation for Prader-Willi Research. Passionate about finding treatments for PWS, Susan joined FPWR in 2009 shortly after her son, Jayden, was diagnosed with Prader-Willi Syndrome. Rather than accepting PWS as it has been defined, Susan has chosen to work with a team of pro-active and tireless individuals to accelerate PWS research in order to change the natural history of PWS. Inspired by her first FPWR conference and the team of researchers that were working to find answers for the syndrome, she hosted her first One SMALL Step walk in 2010 and began the development of the One SMALL Step walk program which now raises over $1.5 million a year for PWS research.

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