Every Donation Will Be Matched Until Thanksgiving!

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We need your help and there has never been a better time to DOUBLE your impact! From now until Thanksgiving, EVERY donation made to our organization will be MATCHED by Leon and Irina Shaulov. 

Scientists funded by the Foundation for Prader-Willi Research are making unprecedented progress in uncovering the underlying cause of many PWS symptoms, paving the way for new drug treatments so that our children may one day, live FULL and independent lives. None of this would be possible without your generous support.  

How can you amplify your impact?

 Click Here to Donate Now

Every donation made between now and Thanksgiving will be MATCHED dollar for dollar with NO LIMIT. Thank you for being a part of this exciting time!


Topics: News

Susan Hedstrom


Susan Hedstrom is the Executive Director for the Foundation for Prader-Willi Research. Passionate about finding treatments for PWS, Susan joined FPWR in 2009 shortly after her son, Jayden, was diagnosed with Prader-Willi Syndrome. Rather than accepting PWS as it has been defined, Susan has chosen to work with a team of pro-active and tireless individuals to accelerate PWS research in order to change the natural history of PWS. Inspired by her first FPWR conference and the team of researchers that were working to find answers for the syndrome, she hosted her first One SMALL Step walk in 2010 and began the development of the One SMALL Step walk program which now raises over $1.5 million a year for PWS research.