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FPWR Announces 2022 Champion of Hope Award Winner

The Foundation for Prader-Willi Research is honored to recognize Dr. Resnick with the 2022 Champion of Hope Award for his many outstanding achievements.

The Foundation for Prader-Willi Research (FPWR) is thrilled to announce the recipient of the 2022 Champion of Hope Award, James Resnick, PhD. The Champion of Hope Award was established to recognize individuals who have made impactful contributions toward FPWR’s mission to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

Jim Resnick 2022 champion of Hope

Dr. Resnick is a Professor of Molecular Genetics & Microbiology in the College of Medicine at the University of Florida. He has spent his career working to advance our understanding of genetic imprinting, making important contributions to the fields of Prader-Willi syndrome (PWS), Angelman syndrome (AS) and Dup15q syndrome research.

Dr. Resnick has been a longtime friend of FPWR, serving on the Scientific Advisory Board for more than a decade. He has quietly provided scientific support and expertise, helping guide the grants program, establishing research collaborations, and mentoring scientists venturing into the PWS field.

FPWR is honored to recognize Dr. Resnick with this award for his many outstanding achievements in research, and for his dedication to supporting FPWR’s work in advancing therapies for PWS! Thank you Dr. Resnick for your contributions to PWS research!

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Topics: News

Susan Hedstrom


Susan Hedstrom is the Executive Director for the Foundation for Prader-Willi Research. Passionate about finding treatments for PWS, Susan joined FPWR in 2009 shortly after her son, Jayden, was diagnosed with Prader-Willi Syndrome. Rather than accepting PWS as it has been defined, Susan has chosen to work with a team of pro-active and tireless individuals to accelerate PWS research in order to change the future of PWS. Inspired by her first FPWR conference and the team of researchers that were working to find answers for the syndrome, she joined the FPWR team in 2010 and led the development of the One SMALL Step walk program. Under Susan’s leadership, over $15 million has been raised for PWS related research.