Nikol Maher, mom to Jack, turned her fear into determination using the family's love of sports.
Tell us about your family and how this all began.
When Jack was diagnosed with PWS at just three weeks old, our world shifted instantly. We were overwhelmed with medical terminology, appointments, and the unknowns of what life would look like for him. In the middle of that fear, we needed something that gave us hope and a sense of purpose.
Thankfully, Jack has a huge, loving extended family who absolutely adore him. Within six months, his aunts and uncles wanted to do something—something that could channel their love for Jack into action. They decided to start a fundraiser to support the research that would shape his future.
We knew research was essential, and we were determined to give back in any way we could.
Why March Madness?
Sports have always been a big part of our family life. So when we were looking for a fun, meaningful way to rally people together, March Madness felt like the perfect fit. The tournament is already something so many people enjoy—filling out brackets, a little friendly competition, shared excitement—and we realized we could turn that into a positive force for Jack.
Our event, Hoops to End Hunger for Jack, is completely online. Each year, we invite friends, family, coworkers, and neighbors to join in by filling out a bracket and making a donation. It’s simple, engaging, and easy for people to participate from anywhere.
Local businesses, sports teams, and friends donate prizes, and the generosity always blows us away. Over the years, this little idea rooted in love and basketball has raised more than $100,000, and the support continues to strengthen our family and Jack’s entire community.
What’s the best part of hosting a March Madness fundraiser?
The simplicity. It’s easy to run, easy to join, and a great way to bring people together. Every year, the support reminds us how many people care about Jack and want to be part of his story. And at the heart of it all, we know we’re helping move research forward for him and for so many others.
Want to take part or start your own?
During March, keep an eye on our social media channels for details on how to participate, how to join the bracket, and how to get involved.
If you ever want help getting started with a similar fundraiser, reach out—we’re happy to share what we’ve learned.
