A special contribution by guest blogger Maegan Richard
When Cade was born, he was fragile and still — a tiny baby who kept doctors guessing and parents on edge. At just four weeks old, Cade was diagnosed with Prader-Willi syndrome (PWS). The geneticist offered little information and even less hope, focusing on the struggles that lay ahead.
And while there have certainly been challenges, Cade has given his family so much more than they ever imagined. “He loves with every bone in his body and is the most genuine little boy you’ll ever meet,” his mom shares. “I’ve always had high expectations for Cade, but what he’s exceeded most is the ability to be happy. His happiness makes everyone who comes in contact with him smile.”
A Journey Strengthened by Community
The road through PWS is not one traveled alone. Cade’s family has found support from many — their local community, their extended family, who truly “get it”; and a network of fellow PWS moms who have become trusted friends and mentors. “They’ve been there for me and schooled me through this journey,” Cade’s mom says. “They’re now some of my very best friends.”
If you are the parents of a newly diagnosed baby, know that their future is bright! “Don’t be afraid to reach out and ask for help — great resources exist, and there’s always someone who’s been through it before to help guide you.”
Hope, Gratitude, and Lessons Learned
What gives Maegan hope? “All the amazing research that’s ongoing and yielding fabulous results,” she says. She’s deeply thankful for the scientists and doctors working to make life less restrictive for those with PWS.
Cade has also been her greatest teacher. Through him, she’s learned the value of structure, a healthy lifestyle, and unconditional love. “Cade keeps me organized, on task, and I am healthier because of him,” she shares. “Our family has grown together with a new respect for differences.”
“I’ve learned so much about myself through this journey. I’ve had to step out of my comfort zone, and it’s made me stronger and shaped who I am today.
Cade’s story is one of love, resilience, and joy — a reminder that life with PWS is not just about managing challenges but celebrating the beauty that shines beyond them. Thank you Maegan for reminding us of this important life lesson!
Do you have a story of hope to share with others about your experiences with PWS? Send it to us!
