Children between the ages of 3 and 11 who have PWS, and their caregivers, are being recruited for two intervention studies being conducted by researchers at Case Western Reserve University.
The study team will be visiting Pittsburgh, PA, on February 6th, and California on March 9-12 to conduct baseline assessments for study participants.
PRETEND (Parent-focused Remote Education to Enhance Development), funded by FPWR, will examine the social, cognitive, and emotional behavior in children with PWS (ages 3-5) and compare them to children without PWS in order to understand strengths and challenges in social communication in PWS. The feasibility of a parent training and education program designed to increase learning and play between parents and children with PWS will be evaluated. More Details
The Telehealth Intervention Study, funded by PWSA-USA, will administer play-based intervention in participants' homes (ages 5-11) using videoconferencing (telehealth) to build skill sets based on the child's development. This study aims to determine the feasibility of using telehealth intervention in the PWS population. More Details
An in-person baseline assessment is required for both studies; however, the Case Western team will be visiting Pittsburgh, San Diego and New York for families in those areas.
Pittsburgh— Saturday, February 6th @ the Children’s Institute PA Eligibility survey
California— Wed-Sat, March 9-12th in San Diego (and possibly LA, depending on interest) CA Eligibility survey
New York - May, dates to be determined.
