Webinar: Fundraising Outside the Walk

You are invited to attend a free webinar: Fundraising Outside the Walk. 

Have you considered hosting a fundraising event to benefit PWS research? Join four veteran event hosts as they share their tips for hosting events "Outside the Walk":
Sarah Peden, FPWR New Parents Committee Chair (Bloomington Summer Festival) 
Laura Miesle (Jack's Party on the Patio), 
Laura Capone (Tommy's Beef and Beer) and 
Jennifer Lee (Fighter Jett Golf Tournament)

have cumulatively raised over $45,000 for research this year and you can be a part of this amazing movement! Learn free and simple techniques that make hosting an event fun and easy. An interactive Q&A session will follow each presenter to provide you the opportunity to have all your questions answered! You don't want to miss this webinar!
Title: Outside the Walk
Date: Thursday, July 24, 2014
Time: 8:00 PM - 9:00 PM EDT
Register Today!

Topics: Research

Susan Hedstrom


Susan Hedstrom is the Executive Director for the Foundation for Prader-Willi Research. Passionate about finding treatments for PWS, Susan joined FPWR in 2009 shortly after her son, Jayden, was diagnosed with Prader-Willi Syndrome. Rather than accepting PWS as it has been defined, Susan has chosen to work with a team of pro-active and tireless individuals to accelerate PWS research in order to change the natural history of PWS. Inspired by her first FPWR conference and the team of researchers that were working to find answers for the syndrome, she hosted her first One SMALL Step walk in 2010 and began the development of the One SMALL Step walk program which now raises over $1.5 million a year for PWS research.

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