We’re excited to introduce two new members of the FPWR team: Karla Blair and Nicci Peterson! As parents, advocates, and passionate members of the PWS community, Karla and Nicci bring heartfelt commitment and a personal perspective to our work. Their stories speak for themselves—and we’re honored to have them join our mission to advance research and improve the lives of those with Prader-Willi syndrome.
Meet Karla Blair
Karla joins FPWR not just as a new team member, but as a devoted grandmother (Mimi) to a child with PWS. Her experience as a grandparent has given her a unique perspective on the strength of PWS families and the importance of supporting research that offers real hope.
“When I learned that our grandchild, Whitnee, had PWS, it was heartbreaking and overwhelming. But in the midst of that fear, we learned about a community full of strength, resilience, and hope. I joined FPWR to advocate for every family navigating this diagnosis, including my own. I want to help turn action into hope by supporting the research and resources that will change lives. This work is deeply personal, and I am grateful to be a part of this team.” — Karla Blair
Meet Nicci Peterson
Nicci also comes to FPWR as a dedicated parent and advocate. Her experience navigating life with PWS has given her a deep understanding of the challenges families face—and a powerful motivation to be part of the solution. She’s eager to help other families feel seen, heard, and supported.
“Our son Will was born in 2020—a time when I felt more isolated and disconnected than ever before. His Prader-Willi syndrome (PWS) diagnosis added even more uncertainty, but discovering FPWR and learning from other families truly saved me. Inspired by the resources, research, and support I received from FPWR, I left corporate America to dedicate myself fully to this community. My greatest wish is for a future where families receive this diagnosis with more answers, more treatments, more empowerment, and more hope—and know from the start that they are never alone as we work together toward breakthroughs in PWS research and care." — Nicci Peterson
We are so proud to welcome Karla and Nicci to the team. Their lived experience and heartfelt dedication are a powerful addition to our shared mission. Please join us in giving them a warm welcome!
