Your 2025 Impact: FPWR Fundraising Wrapped

Every breakthrough, every milestone, and every step forward in 2025 had one thing in common: our community.

Because supporters like you showed up. You shared your story.

You asked others to stand with you.

And it mattered.

Here are just a few highlights from an extraordinary year:

• The first-ever FDA-approved treatment for hyperphagia in PWS: VYKAT XR

• FPWR’s first fully funded clinical trial nearing full enrollment: VNS4PWS

• $2.1 million invested across 16 research projects advancing PWS and SYS science

This progress didn’t happen by accident.  It happened because families refused to settle for “nothing can be done.” Because fundraisers turned effort into impact.

And because donors believed research could move faster, then made it happen.

 

One Small Step’s annual fundraising goal: $250,000. 

This powerhouse crew blew right past that, raising a record-breaking $354,000 in 2025.

Tens of thousands of steps.
One unstoppable community 👣

 

 

From Harvesting Hope to Hoops to End Hunger, from Pennies for PWS to the Art Auction, and everything in between, this community didn’t just show up. It showed out.

Behind every name is a moment of generosity that made a difference 📣

 

 

Facebook fundraisers might be small, but they are mighty! 

They carry this mission one birthday, one shared page, one donation at a time 🧡

 

To our Schaaf-Yang Syndrome families and fundraisers: your strength is pushing research forward in powerful ways for both the SYS and PWS communities. Thank you for trusting us and standing with FPWR 💛

 

What do sausage festivals, clay shooting, and golf have in common?

More than you’d think! They’re all funding research.

Thank you to every event host who made 2025 totally rad 🎉

 

11 runners. 26.2 miles. $82,000 raised!

Huge thanks to Teams Ari, Team Reid, Team Vincent, Team Nate, Team Owen, Team Avery, Team Avir, and Team Hunter for representing Team FPWR with such heart at the NYC Marathon 🏅

Because of you:

• Research continues to accelerate

• Clinical trials reach more families

• New therapies come into focus

• And hope feels closer than ever

From the bottom of our hearts, thank you.

Thank you for your time, your commitment, and your belief in this mission. Your support is making measurable progress possible for individuals and families affected by Prader-Willi syndrome and Schaaf-Yang syndrome.

As we close the chapter on 2025, we do so with deep gratitude and renewed resolve—to keep pushing research forward, to keep accelerating progress, and to keep showing up for every family who needs answers.

With sincere thanks,
The FPWR Team