Background: Prader-Willi syndrome (PWS) is a complex disorder with severe behavioural symptoms that affects the entire family. Relatively little research has focused on the lived experiences of siblings growing up in this unique family environment. Method: Semi-structured interviews were performed...
The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).
The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.
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