Fundraise for PWS & SYS Research

Everything we do, we can do because of YOU. Since our launch in 2003, we have invested over $20M into groundbreaking research. Nearly every dollar has come from affected families and their networks of relatives, friends, colleagues and neighbors. Do you want treatments, and a cure, for PWS? If so, we invite you to join Team FPWR and to play a vital role by fundraising for PWS research.

Get Started Fundraising


Set up a personal fundraising page and share it with your family and friends.


Join a One Small Step event or host one in your own neighborhood.



Join Team FPWR and run in the New York City Marathon! (opportunities are limited)



Join one of our committees or host an event of your own! Email Jacqueline for help getting started!

Participate in our annual art auction and enjoy a friendly competition to see who will be our artist of the year!


Join us for our fitness challenge. Coming Fall 2023




Take ACTION while doing what you LOVE.

What do you love to do? Run, cook, host parties, play music?

Fundraising for PWS research is all about the love. Just pick an activity you love — and we'll turn it into a fundraiser that helps our loved ones with PWS and SYS through life-changing research.

Run a race. Host a chili cook-off. Throw a kickball tournament. Dedicate a birthday, climb a mountain or sing 80's rock ballads for donations. Whatever your idea is, everything you need is here! 



Your Impact

With the support of thousands of donors and fundraisers, FPWR has invested millions of dollars into critical PWS research. We've energized the field of PWS research, developed tools that have been used in labs around the world, and have attracted nearly a dozen PWS clinical trials. We have much to be proud of in our accomplishments but much work left to do. Until treatments have been found that eliminate the challenges of PWS, we must continue on.

Our work is only made possible by the incredible movers and shakers who take action for PWS research. When you fundraise for FPWR, your dollars:

  • Support innovative gene therapy research
  • Investigate novel PWS treatments
  • Improve clinical trial measures
  • Generate critical knowledge of PWS
  • Develop new therapeutic approaches
  • Repurpose existing drugs for use in PWS
  • Improve standards of care for people with PWS
  • Develop resources that facilitate FDA review of new treatments for PWS
  • And more!


Fundraiser Resources

Our motto at FPWR is to work smarter, not harder, so we have created a number of resources to help make fundraising easy! Visit our toolkit and get started today!

Visit the FPWR Fundraiser Toolkit:

Fundraisng Toolkit Cover


Contact Us

Need help getting started? Want to brainstorm fundraising ideas? We want to hear from you! Give us a call at 888-322-5487 or email