FPWR Blog

A tremendous amount of work has been done by The PWS Clinical Trials Consortium to understand and... Read more >
Source: FPWR Blog | Published: July 7 2022 - 09:00 AM
A newly published paper examines sleep disorders, seizures, and psychiatric concerns in PWS. Thanks... Read more >
Source: FPWR Blog | Published: June 6 2022 - 09:00 AM
COVID-19 infections may be particularly worrisome for our loved ones with PWS, since many of the... Read more >
Source: FPWR Blog | Published: June 6 2022 - 09:00 AM
In this 1 hour and 19‑minute video, Dr. Aaron Chidekel, a pediatric sleep specialist, and Cindy... Read more >
Source: FPWR Blog | Published: June 6 2022 - 09:00 AM
A special contribution by guest blogger Allison Shelton On the occasion of Declan’s tenth birthday... Read more >
Source: FPWR Blog | Published: June 6 2022 - 09:00 AM
In this one hour and 17‑minute video, Dr. Tony Holland, Emeritus Professor of Psychology, Cambridge... Read more >
Source: FPWR Blog | Published: May 5 2022 - 12:00 PM
  FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: May 5 2022 - 09:12 AM
Recent evidence from FPWR-supported studies show that Vagus Nerve Stimulation (VNS) may reduce... Read more >
Source: FPWR Blog | Published: May 5 2022 - 07:45 AM
In Prader‑Willi syndrome (PWS), the two main genetic subtypes are PWS by deletion (a small part of... Read more >
Source: FPWR Blog | Published: May 5 2022 - 12:00 PM
A special contribution by guest blogger Rebecca Krylow. Rebecca shared her story via our Stories of... Read more >
Source: FPWR Blog | Published: May 5 2022 - 12:00 PM
The Foundation for Prader-Willi Research announces our first round of Research Awards in 2022... Read more >
Source: FPWR Blog | Published: May 5 2022 - 12:00 PM
Rare genetic disorders can often be challenging to diagnose, resulting in a long diagnostic... Read more >
Source: FPWR Blog | Published: April 4 2022 - 12:00 PM
In this 59‑minute video, Sara Parker, MA, a pediatric speech pathologist, discusses feeding... Read more >
Source: FPWR Blog | Published: April 4 2022 - 12:00 PM
Ghrelin is a small hormone produced in the stomach that stimulates increased appetite. Although it... Read more >
Source: FPWR Blog | Published: April 4 2022 - 12:00 PM