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PWS Awareness Month: How You Can Support Research

Simple ways to raise awareness, support research, and help move PWS forward this May.

May is PWS Awareness Month.

Awareness is where it starts. Action moves research forward.

Whether you have 30 seconds or 30 days, there’s a way for you to make a difference.Awareness Toolkit
Here are 3 ways you can take action this month:

Get the facts. Share what matters.
Sign up for daily PWS facts and pass along the ones that stick with you.
Awareness isn’t noise. It’s understanding.
Sign up >>

Strengthen the data that drives treatment.
The Global PWS Registry helps researchers and the FDA move faster, smarter, and with confidence.
Your surveys matter more than you think.
Visit the Registry >>

Fund the research that changes what’s possible.
Start a fundraising page. Share your story. Invite people in.
Every dollar moves research forward and every gift is matched this month.
Set up your page >>

Need a place to start? Check out our May Awareness Toolkit for ready-to-use resources, graphics, and tips.

 

Prader-Willi Syndrome awareness Month blog

 

Research moves forward because people like you decide it should. Visit our PWS Awareness Month page for more.

 

Topics: News

Susan Hedstrom

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Susan Hedstrom is the Executive Director for the Foundation for Prader-Willi Research. Passionate about finding treatments for PWS, Susan joined FPWR in 2009 shortly after her son, Jayden, was diagnosed with Prader-Willi Syndrome. Rather than accepting PWS as it has been defined, Susan has chosen to work with a team of pro-active and tireless individuals to accelerate PWS research in order to change the future of PWS. Inspired by her first FPWR conference and the team of researchers that were working to find answers for the syndrome, she joined the FPWR team in 2010 and led the development of the One SMALL Step walk program. Under Susan’s leadership, over $15 million has been raised for PWS related research.