Each May, our community comes together to shine a light on Prader-Willi syndrome and accelerate the research that is driving new treatments and transforming lives.
Since 2010, PWS Awareness Month has mobilized families, advocates, and allies across the country to raise awareness, educate others, and inspire action. This May, we invite you to join us and show your commitment to advancing PWS research.
Whether you have 30 seconds or 30 days, there’s a way to make a difference. Here are three ways you can take action this month:
- Raise Awareness –Sign-up to receive our daily PWS facts, then help spread awareness by sharing the facts via email or social media. Sign up >>
- Complete Your Global PWS Registry Surveys – The FDA relies on well-documented data to approve new treatments, and the Registry provides the essential natural history data researchers need. Visit the Registry >>
- Create and Share a Fundraising Page – Every donation fuels the research that will lead to new treatments—and this month, every gift will be matched! Rally your friends and family to support groundbreaking research. Set up your page >>
Want help getting started? Check out our May Awareness Toolkit— for ready-to-use resources, graphics, and tips.
Every action—big or small—brings us closer to a world where PWS no longer holds our loved ones back.
Visit our PWS Awareness Month page for inspiration, tools, and ideas, and be sure to sign up for our PWS Awareness Month emails to receive a daily PWS fact that you can share to help build awareness.
Let’s make this the most impactful Awareness Month yet. With your help, we’ll continue to drive progress and bring hope to every person living with PWS.
Join the conversation online using #PWSAwarenessMonth.
