FPWR Blog

A recently published paper explores a novel gene therapy approach for PWS, delivering a ‘growth... Read more >
Source: FPWR Blog | Published: December 12 2022 - 08:00 AM
Hello FPWR friends! I’m Lisa Burnett and I am thrilled to share that I’ve recently joined the FPWR... Read more >
Source: FPWR Blog | Published: December 12 2022 - 09:00 AM
In this 50‑minute video, Dr. Tony Holland, Dr. Lauren Schwartz, and Dr. Deepan Singh discuss two... Read more >
Source: FPWR Blog | Published: November 11 2022 - 09:00 AM
The time immediately following a diagnosis of PWS can be very difficult, and parents typically are... Read more >
Source: FPWR Blog | Published: November 11 2022 - 10:00 AM
Today, Harmony Biosciences announced topline data on the primary outcome, excessive daytime... Read more >
Source: FPWR Blog | Published: November 11 2022 - 10:49 AM
The Foundation for Prader-Willi Research announces our second round of Research Awards in... Read more >
Source: FPWR Blog | Published: October 10 2022 - 08:00 AM
Thanks to almost 900 PWS families who completed multiple surveys in the Global PWS Registry, a new... Read more >
Source: FPWR Blog | Published: October 10 2022 - 07:00 AM
Is your loved one getting a good night’s sleep? Sleep apnea is a major concern for people with... Read more >
Source: FPWR Blog | Published: October 10 2022 - 10:11 AM
Back by popular demand is FPWR's Harvesting Hope Distance Challenge! Nearly 100 virtual trotters... Read more >
Source: FPWR Blog | Published: September 9 2022 - 08:30 AM
The Foundation for Prader-Willi Research (FPWR) is thrilled to announce the recipient of the... Read more >
Source: FPWR Blog | Published: September 9 2022 - 08:15 AM
Twenty paintings are available to the highest bidders in a unique art auction benefiting the... Read more >
Source: FPWR Blog | Published: September 9 2022 - 06:01 AM
A special contribution by guest blogger Claire Carucci. Our 17-month-old daughter Caroline has... Read more >
Source: FPWR Blog | Published: September 9 2022 - 09:00 AM
A special contribution by guest blogger Lisa Matesevac This summer, my family made our annual... Read more >
Source: FPWR Blog | Published: September 9 2022 - 07:37 AM
A special contribution by guest blogger Julie Foge Eliza turned eight this month, and it’s hard to... Read more >
Source: FPWR Blog | Published: August 8 2022 - 07:00 AM