FPWR Blog

Temper outbursts are a common challenge for many people with Prader-Willi syndrome. The published... Read more >
Source: FPWR Blog | Published: August 8 2022 - 09:05 AM
This September 29 - October 1, parents, caregivers and medical professionals from across the... Read more >
Source: FPWR Blog | Published: August 8 2022 - 07:00 AM
A special contribution by guest blogger Will Greene When our son Ari was diagnosed with... Read more >
Source: FPWR Blog | Published: August 8 2022 - 10:24 AM
Join us September 30-October 1 for our annual gathering of movers, shakers, thinkers, and doers at... Read more >
Source: FPWR Blog | Published: August 8 2022 - 08:00 AM
  FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: July 7 2022 - 09:12 AM
You won’t want to miss these speakers at the 2022 FPWR Family Conference this September and October... Read more >
Source: FPWR Blog | Published: July 7 2022 - 09:00 AM
People with PWS have a higher risk for developing blood clots than the general population, but the... Read more >
Source: FPWR Blog | Published: July 7 2022 - 09:00 AM
A tremendous amount of work has been done by The PWS Clinical Trials Consortium to understand and... Read more >
Source: FPWR Blog | Published: July 7 2022 - 09:00 AM
Two new papers from an international group of PWS expert physicians outline the clinical experience... Read more >
Source: FPWR Blog | Published: June 6 2022 - 09:00 AM
A newly published paper examines sleep disorders, seizures, and psychiatric concerns in PWS. Thanks... Read more >
Source: FPWR Blog | Published: June 6 2022 - 09:00 AM
COVID-19 infections may be particularly worrisome for our loved ones with PWS, since many of the... Read more >
Source: FPWR Blog | Published: June 6 2022 - 09:00 AM
In this 1 hour and 19‑minute video, Dr. Aaron Chidekel, a pediatric sleep specialist, and Cindy... Read more >
Source: FPWR Blog | Published: June 6 2022 - 09:00 AM
A special contribution by guest blogger Allison Shelton On the occasion of Declan’s tenth birthday... Read more >
Source: FPWR Blog | Published: June 6 2022 - 09:00 AM
In this one hour and 17‑minute video, Dr. Tony Holland, Emeritus Professor of Psychology, Cambridge... Read more >
Source: FPWR Blog | Published: May 5 2022 - 12:00 PM