FPWR Blog

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'She Gets Stronger Every Day' Says SYS Mom Inspired by Daughter
A special blog contribution from Stephanie McDade. Last week Gibson rode a tricycle. She pedaled... Read more >
Source: FPWR Blog | Published: June 6 2023 - 01:25 PM
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PWS Clinical Trials Alert
FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: June 6 2023 - 12:21 PM
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‘He Shows Me Everyday What a True Superhero Looks Like’ Says PWS Mom
A special contribution by guest blogger Heather Osterman. Max came into the world with a bang...or... Read more >
Source: FPWR Blog | Published: May 5 2023 - 09:00 AM
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Innovative FPWR-Funded Projects Receive Additional Funding
FPWR’s grant program focuses on supporting innovative, high risk/high reward research in its early... Read more >
Source: FPWR Blog | Published: May 5 2023 - 09:00 AM
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Exciting New Treatment May Reduce Disruptive Behaviors in PWS
UPDATE, MAY 2023: FPWR is preparing to launch our VNS4PWS clinical trial.  We are currently... Read more >
Source: FPWR Blog | Published: May 5 2023 - 04:33 PM
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FPWR Announces 1st Round of 2023 Grants Exceeding $1.9M in Funding
FPWR is pleased to announce that we have recently awarded 13 project awards totaling $1.963M to... Read more >
Source: FPWR Blog | Published: May 5 2023 - 05:35 AM
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A New Rat Model for the Study of Features Underlying Schaaf-Yang Syndrome
Mice have long been the preferred mammal model in research labs due to their cost, size, and... Read more >
Source: FPWR Blog | Published: May 5 2023 - 09:00 AM
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New Venture Philanthropy Investment: Palobiofarma
The Foundation for Prader-Willi Research (FPWR) has provided a new venture philanthropy award, in... Read more >
Source: FPWR Blog | Published: May 5 2023 - 06:00 AM
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‘The Amount of Love and Light He’s Brought to Our Lives Is Immeasurable’
A special contribution by guest blogger Rebecca Noel On May 25th our beautiful son Bron arrived to... Read more >
Source: FPWR Blog | Published: May 5 2023 - 09:00 AM
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Schaaf-Yang Syndrome Across the Lifespan [2022 CONFERENCE VIDEO]
In this one hour and 22-minute video, Dr. Christian Schaaf,  Department Chair of Human Genetics at... Read more >
Source: FPWR Blog | Published: April 4 2023 - 09:00 AM
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May is #PWSAwareness Month | We Have Your PWS Awareness Resources
May is PWS Awareness Month. A time to raise awareness and advance research so we may find new... Read more >
Source: FPWR Blog | Published: April 4 2023 - 09:32 AM
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Small Community, Big Impact
FPWR’s community is made up of parents like you, determined to make a difference for our loved ones... Read more >
Source: FPWR Blog | Published: April 4 2023 - 07:30 AM
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Possible Link Found Between Erythritol and Risk of Thrombosis
You are probably aware that individuals with PWS have a slightly elevated risk for thrombosis... Read more >
Source: FPWR Blog | Published: April 4 2023 - 09:00 AM
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FPWR 2023 Conference Standards of Care
You won’t want to miss these speakers at the 2023 FPWR Family Conference this October in Denver, CO. Read more >
Source: FPWR Blog | Published: April 4 2023 - 09:00 AM
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