Art Auction Combines One-of-a-Kind Art AND Support for PWS Research

cover.jpg4/17/2017 — Note: Bidding closed yesterday, but you can still see these beautiful pieces of art on Facebook!

Twenty unique paintings are available to the highest bidders in a unique art auction benefiting the Foundation for Prader-Willi Research (FPWR). Each piece of art, beautifully painted on a 12×12 canvas, was created specifically for this art show by individuals with Prader-Willi syndrome (PWS).

The quality of art submitted for the auction is remarkable. You simply can’t find pieces as beautiful and unique as these, and 100% of proceeds will benefit much needed PWS research. It’s a win-win.

The hosts of the art auction, Amber and Jason Rector, began this annual fundraiser last year after a friend commented on how much she adored the Rector children’s artwork and asked jokingly if it was for sale. The Rectors ran with the idea and created the auction to celebrate the creativity of our community and raise additional funds for PWS research. The auction is a ‘wrap-around’ event for their annual One SMALL Step walk in Columbus, Ohio and last year raised nearly $2,000! This year they hope to double their success.

When asked why she chose to submit a piece of art for the auction, Nicolle Palen, age 29, said, “I’m excited for the opportunity to use my gift of creativity, to make an impact in this unique way. Not only is it a great chance to raise money and awareness, for FPWR, I also like that it focuses on abilities, rather than limitations, which exemplifies the positivity and sense of community of the organization as a whole.”

Each piece of art has been set up for auction on the One SMALL Step, Columbus Facebook page. Bids can be made in $1 increments by commenting with your bid amount on the photo of your preferred artwork. Bidding ends Sunday, April 16th, at 5pm EST.





Ben Allour, age 9


Emma Vario, age 5


Paul and Evans Whitely, age 2


Jayden Hedstrom, age 8


Julianna Romine, age 12


Lillian Peden, age 7


Max Seidlietz, age 22 


McKenzie Cresmen, age 7


Myles Hollatz, age 5


Peyton Gregg, age 2


Reid Grimmer, age 3


Saige Gartin, age 7


Siena DiMuccio, age 4 


Sophie Tweel, age 8


   Ellie Spearman, age 5


Joey Krylow, age 6


PWS Advocacy and Fundraising Toolkit

Topics: News

Susan Hedstrom


Susan Hedstrom is the Executive Director for the Foundation for Prader-Willi Research. Passionate about finding treatments for PWS, Susan joined FPWR in 2009 shortly after her son, Jayden, was diagnosed with Prader-Willi Syndrome. Rather than accepting PWS as it has been defined, Susan has chosen to work with a team of pro-active and tireless individuals to accelerate PWS research in order to change the natural history of PWS. Inspired by her first FPWR conference and the team of researchers that were working to find answers for the syndrome, she hosted her first One SMALL Step walk in 2010 and began the development of the One SMALL Step walk program which now raises over $1.5 million a year for PWS research.