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Bringing Joy During COVID-19 With Interactive Activities

Are you seeking new ways to stay connected and spice up your day?  Our community members share activities that allow you to connect with family & friends.

With COVID-19 keeping many of us indoors and isolated from our friends and family, we are all seeking new ways to stay connected and spice up our days! A few innovative community members have shared fun activities they have found that allow them to connect with their family and friends with the added bonus of raising a few dollars for PWS research.

You’ve Been Flocked


Flamingo flocking is sure to bring a smile to you and your neighbors' faces! Imagine waking up to a friendly "flock" of plastic pink flamingos sprinkled across your yard wishing you a happy birthday, celebrating a special occasion, or to just to say, "I’m thinking about you." Teresa Walker turned this fun greeting into a fundraiser, where for a minimum donation, she would set up the birds in the neighbor’s yard of your choice. To keep the fun going, that neighbor was then left instructions for how they could choose the next person to be flocked.

Although flocks of flamingos are commonly used, other creatures may be used, as well as temporary signs to help convey the desired message to the recipients. For example, a stork with appropriate signage can be used to announce the birth of a baby.

Virtual Game Night

Kids and adults of all ages love BINGO! Take your game of Bingo "virtual" by distributing your game cards with a digital PDF or by printing and delivering them to your players. It’s a great opportunity to stay connected with friends, have some fun, and raise a little money for a good cause. Chad Snyder (age 9) is hosting a recurring virtual family bingo night complete with prizes, and the "buy-in" is being donated to PWS research!

Blue Grid Fashion Collage Womens Day Instagram Post

Other Fun Ideas: You don't have to limit yourself to Bingo! Go virtual with poker, Pictionary, and more. If you can think of it, you can play it!

Family Scavenger Hunt

Scavenger hunts are easy and fun! How about building a scavenger hunt unique for your own neighborhood? Then invite your neighbors to participate and each family can walk the neighborhood, or drive, and take a photo of each item on the scavenger list that they find. Throw in a few prizes if you like or request a small donation to support PWS research! Here are a few things you might include in your hunt:

  • A flower
  • Leaves from 3 different trees
  • Something that is red
  • A piece of wood
  • Something shiny
  • Something made out of plastic
  • A feather
  • Something that begins with the first letter of the birthday kid’s name
  • A leaf with insect holes in it

Virtual Walk

thousand oaks collage-1With shelter-in-place orders across much of the country, Liz Pieri had to get creative in the execution of her One SMALL Step Walk, scheduled for April 4th in Thousand Oaks, CA. While families couldn't gather together to walk, Liz encouraged her supporters to observe social distancing measures and walk in their own neighborhoods. On April 4th supporters from all over the country donned their One SMALL Step t-shirts and snapped photos of their families walking in honor of Iris, who has PWS. In total, the group raised over $18,000 for PWS research!

Have a fun idea to share?

We would love to hear from you! Send us an email.

Every donation, large or small, is making a difference in our search for treatments and a cure for PWS. In these unprecedented times, your support is making an even greater impact. Thank you for your efforts, large and small! 

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Topics: News

Susan Hedstrom


Susan Hedstrom is the Executive Director for the Foundation for Prader-Willi Research. Passionate about finding treatments for PWS, Susan joined FPWR in 2009 shortly after her son, Jayden, was diagnosed with Prader-Willi Syndrome. Rather than accepting PWS as it has been defined, Susan has chosen to work with a team of pro-active and tireless individuals to accelerate PWS research in order to change the future of PWS. Inspired by her first FPWR conference and the team of researchers that were working to find answers for the syndrome, she joined the FPWR team in 2010 and led the development of the One SMALL Step walk program. Under Susan’s leadership, over $15 million has been raised for PWS related research.