During a time when much feels uncertain, one constant that we can count on is the never ending drive and tenacity of our PWS families and their desire to improve the future of Prader-Willi syndrome through supporting research.
2020 has brought a slew of challenges for non-profit fundraising but as we have come to expect, our community members have risen to this challenge! While following the guidelines of social distancing, many of our fundraisers have gotten creative and are taking their efforts virtual! From Car-aoke, to Virtual/Remote One Small Step walks, to taking the 15 for 15 challenge, families are banding together and showing up in a big way.
One SMALL Step walks in Chicago (IL), Richmond (VA), Thousand Oaks (CA) and Marshfield (MA) went virtual this year and collectively raised over $75,000! They celebrated by walking remotely in their neighborhoods with friends, family and fur-animals.
“Although our walk was very different this year, I hope it showed Lincoln that despite whatever obstacles & challenges come our way we’ll keep fighting & we will never give up.” – Kristine Mosca, Mom to Lincoln
“We walk for hope, research and we walk for the future.”
– Sue Greco, Mom to Brandon
Ashley Jones took her fundraiser virtual and offered to sing Car-aoke for donations. She raised over $2800 for PWS research!
And the 15 for 15 challenge has seen its share of creativity, including Rebecca Krylow who challenged herself to walk 15,000 steps for 15 days in the month of May to raise awareness for and fundraise for research!
We have so much work to do in 2020 to bring treatments to our loved ones living with Prader-Willi syndrome. On behalf of all of the families in the Prader-Willi syndrome community, THANK YOU. Thank you for not giving up hope. Thank you for not letting anything stop you from moving forward with the mission. We are working hard through the obstacles of 2020 to continue PWS research, and we simply could not do it without you.
Do you have a creative fundraising idea? Contact us and let us help you get started!