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Car-aoke, Other Creative Fundraisers Fueled By Social Distance

In a time of social distance, members of the PWS community are getting creative with fundraising, including car-aoke, the 15 for 15 challenge, and more!

During a time when much feels uncertain, one constant that we can count on is the never ending drive and tenacity of our PWS families and their desire to improve the future of Prader-Willi syndrome through supporting research.  

2020 has brought a slew of challenges for non-profit fundraising but as we have come to expect, our community members have risen to this challenge! While following the guidelines of social distancing, many of our fundraisers have gotten creative and are taking their efforts virtual! From Car-aoke, to Virtual/Remote One Small Step walks, to taking the 15 for 15 challenge, families are banding together and showing up in a big way.

car-aoke-other-creative-fundraisers-fueled-by-social-distance-1One SMALL Step walks in Chicago (IL), Richmond (VA), Thousand Oaks (CA) and Marshfield (MA) went virtual this year and collectively raised over $75,000! They celebrated by walking remotely in their neighborhoods with friends, family and fur-animals.

“Although our walk was very different this year, I hope it showed Lincoln that despite whatever obstacles & challenges come our way we’ll keep fighting & we will never give up.” – Kristine Mosca, Mom to Lincoln

“We walk for hope, research and we walk for the future.”
– Sue Greco, Mom to Brandon


Ashley Jones took her fundraiser virtual and offered to sing Car-aoke for donations.  She raised over $2800 for PWS research!

And the 15 for 15 challenge has seen its share of creativity, including Rebecca Krylow who challenged herself to walk 15,000 steps for 15 days in the month of May to raise awareness for and fundraise for research!

We have so much work to do in 2020 to bring treatments to our loved ones living with Prader-Willi syndrome. On behalf of all of the families in the Prader-Willi syndrome community, THANK YOU.  Thank you for not giving up hope.  Thank you for not letting anything stop you from moving forward with the mission.  We are working hard through the obstacles of 2020 to continue PWS research, and we simply could not do it without you.

Do you have a creative fundraising idea? Contact us and let us help you get started! 



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Topics: News

Sarah Peden


Sarah is FPWR's One Small Step coordinator. She became involved with FPWR shortly after the diagnosis of her daughter, Lily in late 2009. She first began fundraising through her “Running for Lillian” event where she and her friends raised funds for PWS research through peer-to-peer fundraising. Sarah joined the One SMALL Step team in 2012 holding her first of many walks in Bloomington, Indiana. Sarah has held multiple volunteer roles with our organization prior to joining our staff and was the chair of our Community Leadership committee from 2014-2015. She has more than 11 years of event planning experience with for-profit and non-profit organizations and hold a Bachelor of Science in Recreation with an emphasis in tourism, hospitality and event management from Indiana University.